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Culture and Ethnicity: Critical Factors in Irish Early Intervention Services.

Culture and Ethnicity: Critical Factors in Irish Early Intervention Services. Presented by: Ndemazia Asonglefack Jingwa PhD Student University College Cork 14 th June 2019. Research Overview.

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Culture and Ethnicity: Critical Factors in Irish Early Intervention Services.

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  1. Culture and Ethnicity: Critical Factors in Irish Early Intervention Services. Presented by: NdemaziaAsonglefackJingwa PhD Student University College Cork 14th June 2019

  2. Research Overview • Ireland moved from emigration in the past to immigration in the 1990s from different parts of the world, including Africa. • Opportunities in terms of enrichment for all inhabitants. • Challenges in terms of integrating immigrants at an individual and group/societal level (Immigrant Council of Ireland, 2016). • Culture and identity are important in the health sector in terms of: shaping people’s definitions, perceptions of and response to health and illness; and influencing how people approach and respond to health services (Martin, 2002). • Increased need for “culturally sensitive” and “culturally appropriate” services and programs for people with disabilities (Groce, 2005).

  3. Contemporary Studies Studies in the USA and Canada indicate: -Discrimination -Oppression in power relationships in accessing disability services -Not being provided with necessary services in an appropriate manner (Simon, 2001; Balcazar, et al., 2012) Is this the case in Ireland? This study sets out to investigate the above, given that there is no current literature on the experiences of immigrant families of children with disabilities accessing Irish Early Intervention services.

  4. Research Focus • This is a qualitative study of the lived experiences of African immigrant parents of children with disabilities in relation to access and utilisation of Irish Early Intervention services and ways in which these could be enhanced. • The research will investigate how cultural perceptions affect the way African immigrant parents of children with disabilities approach and relate to Early Intervention services in Ireland, and how the idea of cultural competence may be useful in understanding how professionals working in Early Intervention services understand and work with African immigrant parents of children with disabilities.

  5. Method • Semi-structured individual interviews of African parents and healthcare professionals and in-depth review of related literature will be applied. • Thematic content analysis will be used to analyse data.

  6. Emerging themes • From Parents: • General feeling of gratitude (bonus) • Different Perceptions of disability (language, meanings, cure, intervention) • Differences in Culture/insensitivity (relay of diagnosis, office meetings/authority) –This raises the need for staff to educate themselves on the culture of their clients. • Lack of Awareness of services and how the system works (public education through open sessions in the community) • Misallocation of resources

  7. Emerging themes Parents Continued… • Not enough information given to parents. • Need for incorporation of African diets by professionals. • Going with the flow to avoid being hurt - The need for the African community to speak out rather than go with the flow. • Allocation of an advocate in disability services for the needs of immigrant families of children with disabilities from the same area of origin. • African cultural perceptions as barriers. • Lack of family support. • Social Isolation – the need for a gathering of parents of children with disabilities once or twice a year.

  8. Emerging themes • From Professionals: • Language barriers. • Cultural competence education and training –mandatory. • Early Intervention Service configuration seems to have been deliberately made complex and keeps changing, making it difficult to navigate the system, more so for African parents due to unfamiliarity with Irish systems. • Parental perceptions of disability. • Lack of resources to sometime s give more time to ‘struggling’ parents. • Need for more research into the needs of immigrant parents of children with disabilities.

  9. References • Balcazar, F. E., Suarez-Balcazar, Y., Adames, S. B., Keys, C. B., Garcia-Ramirez, M., & Paloma, V. (2012) ‘A case study of liberation among Latino immigrant families who have children with disabilities’, American Journal of Community Psychology, 49, 283-293. • Groce, N. (2005) ‘Immigrants, Disability and rehabilitation’, In Stone, J. H. (2005) Culture and Disability: Providing Culturally Competent Services, London, Sage, Multicultural Aspects of Counselling Series 21, pp 1-14. • Immigrant Council of Ireland (2016) ‘Submission to The Policing Authority Code of Ethics for An Garda Síochána’, Dublin 2, St Andrew Street. • Martin, M., TD (2002), ‘Meeting the Challenges of Cultural Diversity in the Irish Health Sector: An Overview’, In NCCRI and IHSMI (2002) ‘Cultural Diversity in the Irish healthcare Sector: Towards the Development of Policy and practice Guidelines for organisations in the Health Sector’, pp. 3-8. • Simon, M. (2001) ‘Beyond broken promises: Reflections on eliminating barriers to the success of minority youth with disabilities’, Journal of the Association for Persons withSevere Handicaps, 26(3), 200-203.

  10. Thank You!

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