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NACC Update

NACC Update. ADC Director’s Meeting October 2003. New NACC Faculty. Thomas Koepsell, MD, MPH New Co-Director in competitive renewal Too many credentials to list… Annette Fitzpatrick, PhD Asst. Professor, Epidemiology Previously with CHS and GEM studies

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NACC Update

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  1. NACC Update ADC Director’s Meeting October 2003

  2. New NACC Faculty • Thomas Koepsell, MD, MPH • New Co-Director in competitive renewal • Too many credentials to list… • Annette Fitzpatrick, PhD • Asst. Professor, Epidemiology • Previously with CHS and GEM studies • Years of coordinating center experience

  3. Cumulative totals, additions and active subjects in MDS

  4. Clinical Dementia status of 2003 MDS Subjects

  5. Neuropathology data • Add cases as ready: No Data Call • Edits of past cases • Web browser data entry • other means of input • Database “frozen” twice/yr for reports • Director certified data • Current data viewable on web • Neuropathology leads the way…..

  6. NACC Collaborative Projects • New Award: D. Tsuang, MD • Clinical, pathologic and genetic characteristics of DLB • Thirteen NACC projects funded to date • Productivity increasing • Nine papers • Fifteen abstracts • Thank you!

  7. NACC and Clinical Data Expansion • Implement the Uniform Data Set • Data base structure • Web-based and other I/O • Submit as needed; no data calls • Prospective visits only • Longitudinal follow-up • Seamless integration • NP data • MDS

  8. Continuous Consultation Coverage • Methodologic & statistical consultation • Database management • Secondary analysis from database • ADC investigators encouraged • NACC: initiation or support function • Web-site improvements • Training video capabilities

  9. NACC Competing ContinuationSeems like only yesterday… • Due November 1 • Continuing Improvements • Support • Data access • UDS: standardized, accumulated, longitudinal data • Increased investigator opportunity through data sharing

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