Second General Assembly 2013 of the European Association for Palliative Care Second call: Thursday 31 May 2013,

1. Second General Assembly 2013 of the European Association for Palliative CareSecond call: Thursday 31 May 2013, from 18.15 to 19.15 • Welcome from the President

2. Second General Assembly 2013 of the European Association for Palliative Care President’s Report 31st May 2013

3. The European Association for Palliative Care Prof Sheila Payne EAPC President 2011 - 2015, Director of the International Observatory on End of Life Care

4. Associations Collective Members of the EAPC as at February 2013 Norway:NFPMNPA Iceland:IAPC IceUK:APMGB&IAPCSWPCRSIOELCIANPCIreland:IAPC IreAIIHPCBelgium:FPCFFWSPFBSP LuxemburgALMPFrance:SFAP Portugal:PAPCSpain:SECPALSCBCP Netherlands:Palliactief Denmark: DSPaM Finland:SPLYSPHY Sweden:SFPMNRPV Latvia:PALL Lithuania:LPMA Poland:PAPCPTMP Ukraine:LHPCDU Czech Rep.AHPCP CSPM ArmeniaPC&PCA  Romania:ANIPSRPT Switzerland:Palliative Ch Associations: 54 Countries: 32 Austria: OGPDVHÖ Croatia:CrSPMCAHF Greece:HSPSCHSPSCCNCP Italy:SICPFCP Hungary:HHPA Germany: DGPBK Slovakia:AHAPS Albania:FHC Israel:IAPC IsrIPMS Cyprus:PACYCAF

5. EAPC Board of Directors 2011 - 2015

6. EAPC Head office staff and collaborators Silvana Gori Assistant Officer Avril Jackson Information Officer Heidi Blumhuber CEO Amelia Giordano Executive Officer Farina Hodiamont Congress coordinator

7. The European Association for Palliative Care Mission Statement • The EAPC brings together many voices to forge a vision of excellence in palliative care that meets the needs of patients and their families. • It strives to develop and promote palliative care in Europe through information, education and research using multi-professional collaboration, while engaging with stakeholders at all levels.

8. EAPC Communication • Web site – www.eapcnet.eu • Palliative Medicine • European Journal of Palliative Care • EAPC Blogwww.eapcnet.wordpress.com • Facebook http://www.facebook.com/EAPC.Onlus • Twitter

9. EAPC Social Media Team Bringing you current news, opinion and debate on palliative care in Europe and beyond… To contribute, please contact: avriljacksoneapc@gmail.com

10. EAPC Task Forces 6 streams of work: Highlights: • Revised EAPC Atlas on Palliative Care Development in Europe • Survey on Spiritual Care • Survey on Occupational therapy roles

11. EAPC highlights – clinical guidelines and white papers Clinical guidelines on pain management for cancer patients Caraceni A, Hanks G, Kaasa, S, Bennett M.I et al Use of opioid analgesics in the treatment of cancer pain: evidence-based recommendations from the EAPC The Lancet Oncology 2012; 13(2)e58-e68 White papers Dementia and Palliative care Outcome measures in Palliative Care Palliative care for older people living in Long term care settings Core competences in education for general palliative care practitioners

12. Policy – Eu funded projects platform Offer a platform for EU funded projects On the EAPC web, and the congresses

13. New EAPC task forces on palliative care for specific patient groups • Bereavement • Volunteers

14. EAPC Projects on older people Quality of Life in Old Age until the End Dialogue between Geriatrics and Palliative Medicine There is urgency to develop palliative care services for elderly patients, experts say. For this reason, the Vice-President of the European Parliament Gianni Pittella, in collaboration with the Maruzza Lefebvre Foundation, promoted a first ever dialogue between palliative medicine and geriatrics at an EU level. The event took place at the European Parliament in Brussels on September 25th 2012. The event is embedded into the framework of the European Year for Active Ageing and Intergenerational Solidarity. At this occasion, the EAPCand the European Union Geriatric Medicine Society (EUGMS) launched a jointmanifesto promoting a European action plan on palliative care and geriatrics. The objective is to improve the quality of life of elderly patients with chronic diseases and cut back on health care costs by up to 60 per cent. Its ultimate scope is to insert geriatric palliative care in the EU agenda, hoping it becomes a human right one day. The manifesto can be downloaded from the EAPC website

15. EAPC Projects Palliative care for infants, children, and young people Mapping of paediatric palliative care services in Europe. The aim of this project is to build a map of services of PPC present in Europe by collecting data relative to the organization of each service and its role in training and research (if any). The objectives are: • To gather information on paediatric palliative care (PPC) provision in Europe. • To identify possible critical aspects in the number and organisation of PPC services in relation to the estimated needs. • To propose the data obtained as a guide to optimise the use of available resources. • To diffuse the information at all levels (administrators, health providers, professionals, and the general public).

16. The EAPC Research Network In 2007 Stein Kaasa, of the University of Trondheim, took over the chair and coordination of the Research Network and created the European Palliative Care Research Centre based in Trondheim. He invites all healthcare professionals who see the potential in conducting European multicentre research, to take part in developing a platform for this type of research within the EAPC Res Net . The EAPC Research Network can offer: An established structure for collaborative research A potential for further development of this collaboration A research centre as an external infrastructure for taking care of data handling, organization of studies A meeting point for discussions and exchange of knowledge The biannual EAPC Research Congress A Junior Forum for PhD students and other less experienced researchers

17. EAPC Research Network European Palliative Research CentreTrondheim 143 Research centres 21 Countries EAPC

19. EAPC Congresses

20. Advocacy Work: Palliative Care as a human right

21. EAPC Early Researcher Award • The EAPC would like to honor outstanding young (novice) scientists and clinicians for their contributions to palliative care. The award aims to highlight their personal career development and their potential for the future. Three award winners will be selected – The winner of the first place be asked to give a plenary lecture at the EAPC World Research Congress 2014. • Online nomination link and application informationcan be found at the congress website at :www.eapcnet/research 2014 • Application deadline is November 30, 2013. • You can read more about the Award and the winners of theprevious years at: www.eapcnet.eu/Corporate/Events

24. Second General Assembly 2013 of the European Association for Palliative Care • Treasurer’s Report

25. General Assembly 2013 - Treasuer’sReport • The Financial Report 2012 wasapproved on 21 April 2013 at the Ga, in Munich, Germany • Itpresented a positive result of 4.791 Euro thatwereadded to the reserves • documentsavaibleat: http://www.eapcnet.eu/Corporate/AbouttheEAPC/EAPCofficaldocuments/EAPCGeneralAssemblies.aspx

26. General Assembly 2013 - Treasuer’s Report Budget 2013 • The Budget 2013 wasapproved on 21 April 2013 at the EAPC G.A. Munich, Germany • It reports a negative balance of 24409 Euro • documentsavaibleat: http://www.eapcnet.eu/Corporate/AbouttheEAPC/EAPCofficaldocuments/EAPCGeneralAssemblies.aspx

27. Second General Assembly 2013 of the European Association for Palliative Care • Anyothermatters

28. Thankyouforyourattention Forfurther information pleasevisit: www.eapcnet.eu