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Patient Navigation Center Disease Impact Overall Report

Patient Navigation Center Disease Impact Overall Report. Methodology & Background. The Patient Navigation Center served 2,176 unique individuals during its first six months of operation

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Patient Navigation Center Disease Impact Overall Report

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  1. Patient Navigation CenterDisease Impact Overall Report

  2. Methodology & Background • The Patient Navigation Center served 2,176 unique individuals during its first six months of operation • Patient Navigators assisted patients through 5,252 interactions, comprising phone calls, emails, texts, website live chats, and Skype calls. • The Patient Navigation Center caseload has grown 328% since opening in February 2016 • Health education inquiries have grown 315% compared to the same time period during the previous year (2015)

  3. Gender N= 2,175

  4. Language Spoken N=1,205

  5. Ethnicity n=147

  6. Age N=654

  7. Location: US N=1,310 Top 10 States:

  8. Location: US

  9. Location: International N=2,175 9% of inquiries are international Top 10 non-US countries

  10. Location: international

  11. Psoriasis vs Psoriatic Arthritis N=805

  12. Severity: Psoriasis N=590

  13. Severity: Psoriatic Arthritis N=398

  14. Current Treatment N=1,114

  15. Comorbidities n=786

  16. Education Case Attributes

  17. Impact of Psoriatic Disease on Everyday Life My Psoriatic Disease Affects My Overall Emotional Well-Being N=387

  18. Impact of Psoriatic Disease on Everyday Life I Feel Self-Conscious with Regards to My Psoriatic Disease N=389

  19. Impact of Psoriatic Disease on Everyday Life I Have Physical Irritation From My Psoriatic Disease N=388

  20. Satisfaction with Care and Treatment I am Satisfied with the Effectiveness of My Medication N=193

  21. Satisfaction with Care and Treatment I am Satisfied with the Out-of-Pocket Costs of My Treatment N=383

  22. Satisfaction with Care and Treatment I am Satisfied with the Care I Receive From My Doctor N=393

  23. Satisfaction with Care and Treatment I am Satisfied with the Overall Treatment for My Psoriasis N=390

  24. Satisfaction with Care and Treatment I am Satisfied with the Overall Treatment for My Psoriatic Arthritis N=365

  25. Patient Engagement and Feelings of Empowerment I Feel Confident in My Ability to Maintain a Healthy Lifestyle and Manage My Disease N=393

  26. Patient Engagement and Feelings of Empowerment I Have all the Information I Need to Make the Best Decisions about My Healthcare N=390

  27. Patient Engagement and Feelings of Empowerment I Have the Ability to Participate in Getting the Best Care N=388

  28. Patient Engagement and Feelings of Empowerment I Feel Ownership and Responsibility for My Health N=386

  29. Patient Treatment Goals

  30. Stories from the Navigation Center • Emily • Newly diagnosed with guttate psoriasis • Under a lot of stress • In working with her Navigator, we were able to: • Connect her with a new doctor closer to home for her phototherapy appointments • Coached her through ways of making her phototherapy trips easier (travel with her dog, shopping, finding a park to walk, etc.). • Provided her with disease management and treatment information • Connected her with a volunteer in Psoriasis One to One

  31. Stories from the Navigation Center • Beth • Contacted NPF seeking help in finding a rheumatologist • Has had significant inflammation and pain in her connective tissue and some nail changes in finger and toe nails. • Was diagnosed several years ago with PsA, but recently had the diagnosis removed and treatment suspended • In working with her Navigator, wee were able to: • Help her locate a new rheumatologist who reinstated her psoriatic arthritis diagnosis and created a long-term treatment plan for her • She is very happy with her new care teamand the level of attention they provide to her

  32. Stories from the Navigation Center • Sally • Parent of a teen with psoriasis • Unsatisfied with current treatment • Suspected psoriatic arthritis • In working with her Navigator, we were able to: • Connect her with additional specialists in her area • Provide information about other treatment options and combination treatment plans • Provide her with information about how to get involved with local events in her area to meet other teens living with psoriasis

  33. Stories from the Navigation Center • John • Has severe genital psoriasis • Feeling isolated, discouraged with treatment options • Contacted the Navigation Center for support • In working with his Navigator, we were able to: • Connect him with another volunteer living with genital psoriasis through the One to One support program • Help prepare him to discuss other treatment options with his dermatologist • Coached him through stress management strategies and positive ways to cope

  34. Stories from the Navigation Center • Clara • Has had severe psoriasis all of her life • Negative experiences with health care providers in the past have led to fear and ambivalence about seeking treatment • Currently not treating or seeing a health care provider • In working with her Navigator, we were able to: • Utilize coaching and motivational interviewing strategies to help Clara overcome her anxiety about seeking medical care • Locate a qualified specialist in her area • Clara is now seeing a dermatologist for the first time in many years and is optimistic about treatment

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