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Enhancing the Consumer Health Experience

Enhancing the Consumer Health Experience. J. Michael Fitzmaurice, Ph.D. Agency for Health Care Policy and Research April 27, 1999. Overview. Government has useful web sites Quality criteria for site evaluation are available HITI -- Science Panel Report -- Deering article. AHCPR Web Page.

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Enhancing the Consumer Health Experience

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  1. Enhancing the Consumer Health Experience J. Michael Fitzmaurice, Ph.D. Agency for Health Care Policy and Research April 27, 1999

  2. Overview • Government has useful web sites • Quality criteria for site evaluation are available • HITI -- Science Panel Report -- Deering article

  3. AHCPR Web Page • To get to a government agency’s web site: • www.[agencyinitials].gov • E.G., www.hhs.gov or www.ahcpr.gov • Health information • AHCPR.GOV • Consumer.gov/health.htm • scipich.org • healthfinder.gov

  4. ahcpr.gov • Choosing Quality Health Care • Choosing and Using a Health Plan • Consumer Health • Consumer Assessment of Health Plan Survey--consumer surveys and reporting • National Guidelines Clearinghouse • guidelines.gov • CONQUEST--clinical perf. measures

  5. hhs.gov • Data Council • Nat. Comm.on Vital and Health Statistics • Hearings: agenda, testimony, minutes • Reports • Public meeting schedules • HIPAA Administrative Simplification • P.L. 104-191 • Notices of Proposed Rules, and public comments • FAQs

  6. consumer.gov • Aging/Elder Care • Buying Smart • Choosing Quality Health Care • Dieting and Weight Control • Diseases • Exercise and Fitness • Health insurance

  7. scipich.org • Learn about evaluating and selecting interactive health communication (IHC) applications • Evaluation reporting template • Selected resource links • Scientific articles published by the Panel

  8. healthfinder.gov • A gateway web site!! • Hot topics • AIDS, Cancer, Alternative medicine, Food safety, Diabetes, Medicare, Tobacco • News • Smart Choices • Prevention and self care, Online healthinfo • Choosing quality care, Fraud and complaints • Tools--build your own health web site

  9. SciPICH Report • What are the potential risks and benefits of these emerging technologies? • Ensure high quality and effectivness, how? • What is the science or evidence base? • Role of health professionals and others? • Nationally, how do we improve health for all people using these technologies?

  10. Capabilities Needed • Ability to assimilate patient outcome information in a meaningful way, about • Individual patients • Similar patients • Comparable treatments • Providers, Institutions, Health plans • Ability to present information in a meaningful way for medical and personal health decisions

  11. Strategies • Privacy • Personal health information (PHI) is individually identifiable health information • PHI must be protected • The conditions under which PHI may be received, used, and disclosed must be understood • May take a Federal privacy law to achieve uniformity and national consensus

  12. Strategies • The more uniform the conditions across geographical areas and uses, the more efficient information transfer will be. • Look for common and innovative security solutions for health • Commerce • Defense

  13. Strategies • Promote health data standards development • Medical vocabulary, syntax, codes • Data set content to support common functions • Billing -- Patient record -- Images • Medical test ordering and results reporting • Emergency data

  14. Strategies • Identify priority research areas where necessary information to support private sector investment is lacking • Telemedicine • Improved medical and cost efficiency • CPR • Uniform information for patient care, research, public health, public policy • CDSS--ADE • Reduced errors in medicine

  15. Strategies • Bridge the gap between high-speed computation and advanced networking and health care uses. • Demonstrations, pilot studies • Evaluations • Population research • Disease-based simulations • Modeling State and community uses • Public Health reporting • Public program enrollment (1-stop shopping)

  16. Strategies • Evaluation • Technical feasibility • Application in the community • Effect on well-being • Patient health outcome • Productivity at work • Enjoyment of life • Cost-benefit analyses

  17. Future • Laporoscopic Surgery • Nintendo docs • Cannot train everyone to be an MD, need consumer research summaries • What information is most useful for: • Improving or maintaining health status • Caring for aging population • Educating care givers

  18. Challenges • Privacy, confidentiality, security • Physician productivity • Obtaining comparable health data • Describing and measuring concepts • Common vocabulary • Collection, storage and retrieval

  19. Challenges • Realizing the complexity of medicine • How much is art? • How can we increase the science? • Evidence-based medicine • It is hard to describe medical conditions, processes, and patient outcomes • Training and education in net health infomation use for • Physicians, Patients, Public

  20. Challenges • Address errors in medicine • Recent literature: • Leape -- Bates -- Others • Adverse Drug Events • Chemotherapy overdoses • Allergic reactions • Amputation of wrong limb

  21. Challenges • Measuring patient outcomes • Measures • Cost of collection • Interpersonal comparisons of satisfaction • Measuring quality • Clinical performance measures • Practice guideline variances • Treatment variation in the population

  22. Future • How much PHI are we willing to give up to receive the benefits of • National and regional health data bases • Better purchasing information • Targeted consumer health information • Good health information, how will we know it is good? • Role of government?

  23. Enhancing the Consumer Health Experience J. Michael Fitzmaurice, Ph.D. Agency for Health Care Policy and Research April 27, 1999

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