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Assuring quality of patient decision aids The IPDAS Story 2003-2013

Assuring quality of patient decision aids The IPDAS Story 2003-2013. Dawn Stacey RN, PhD Research Chair in Knowledge Translation to Patients Full Professor, School of Nursing Director of the Patient Decision Aids Research Group Scientist, Ottawa Hospital Research Institute.

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Assuring quality of patient decision aids The IPDAS Story 2003-2013

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  1. Assuring quality of patient decision aidsThe IPDAS Story 2003-2013 Dawn Stacey RN, PhD Research Chair in Knowledge Translation to Patients Full Professor, School of Nursing Director of the Patient Decision Aids Research Group Scientist, Ottawa Hospital Research Institute

  2. International Patient Decision Aid Standards IPDAS Steering Committee: Glyn Elwyn & Dawn Stacey (Co-Leads), M Barry, N Col, A Coulter, K Eden, M Härter, M Holmes-Rovner, H Llewellyn-Thomas, V Montori, N Moumjid, M Pignone, R Thomson, L Trevena, R Volk, T van der Weijden To enhance the quality and effectiveness of patient decision aids by establishing a shared evidence-informed framework for improving their content, development, implementation, and evaluation.

  3. IPDAS Phases 2003-2006 Developing the Checklist (modified Delphi process) 2006-2009 Developing the Instrument (psychometric evaluation) 2009-2013 Agreeing Minimal Standards (modified Delphi process) 2011-2013 Updating evidence underlying the IPDAS checklist (knowledge synthesis)

  4. International Patient Decision Aids Standards Collaboration (IPDAS) Objective: To establish internationally approved criteria to determine the quality of patient decision aids. These criteria are helpful to individuals and organizations that use and/or develop patient decision aids: Patients Practitioners Developers Researchers Policy makers or payers To learn more, visit:ipdas.ohri.ca >100 participants from 14 countries Elwyn, et al., BMJ. 2006 Aug 26; 333(7565):417. http://www.ncbi.nlm.nih.gov/pubmed/16908462

  5. 12 Dimensions Essential Content Information Probabilities Values clarification Guidance Patient Stories Effectiveness Criteria Decision process Decision quality Generic Criteria Development process Disclosure Internet delivery Balance Plain language Up to date evidence International Patient Decision Aids Standards Collaboration Quality Criteria Elwyn, et al., BMJ. 2006 Aug 26; 333(7565):417. http://www.ncbi.nlm.nih.gov/pubmed/16908462

  6. International Patient Decision Aid Standards (IPDAS) presenting probabilities (Elwyn et al., (2006) in BMJ 333(7565):417; Trevena et al. (2006) in J Eval Clin Practice)

  7. Prostate Cancer Knowing Your Options: A Decision Aid for Men With Clinically Localized Prostate CancerAgency for Healthcare Research and Quality (AHRQ) Localised prostate cancer - low riskOption Grid Collaborative

  8. IPDAS Phases 2003-2006 Developing the Checklist 2006-2009 Developing the Instrument 2009-2013 Agreeing Minimal Standards 2011-2013 Updating evidence underlying the IPDAS checklist

  9. IPDASi uses a 4-point scale with items descriptors (strongly agree to strongly disagree) Elwyn, et al., PLoS One. 2009;4(3):e4705. http://www.ncbi.nlm.nih.gov/pubmed/19259269

  10. IPDAS Phases 2003-2006 Developing the Checklist 2006-2009 Developing the Instrument 2009-2013 Agreeing Minimal Standards 2011-2013 Updating evidence underlying the IPDAS checklist

  11. IPDAS v4.0Items across the 3 Categories Joseph-Williams, et al., MDM. 2013 Aug 20. https://www.ncbi.nlm.nih.gov/pubmed/23963501

  12. Summary of qualifying criteria • describes the health condition or problem • explicitly states the decision that needs to be considered • describes the options available • describes the positive features • describes the negative features • describes what it is like to experience the consequences Joseph-Williams, et al., MDM. 2013 Aug 20. https://www.ncbi.nlm.nih.gov/pubmed/23963501

  13. Summary of certifying criteria • equal detail for negative and positive features of options • citations to the evidence • production or publication date • update policy • information about uncertainty around probabilities • funding source used for development For screening decision aids • describes what the test is designed to measure • next steps after positive test result • next steps after negative test result • consequences of detecting a benign condition Joseph-Williams, et al., MDM. 2013 Aug 20. https://www.ncbi.nlm.nih.gov/pubmed/23963501

  14. IPDAS Phases 2003-2006 Developing the Checklist 2006-2009 Developing the Instrument 2009-2013 Agreeing Minimal Standards 2011-2013 Updating evidence underlying the IPDAS checklist

  15. 2013 Peer-reviewed Publications for IPDAS Collaboration’s Quality Dimensions BMC Medical Informatics and Decision Making 2013, 13(Suppl 2). http://www.biomedcentral.com/bmcmedinformdecismak/supplements/13/S2

  16. Proposed National Certification Process for patient decision aids • Setting criteria for certification – IPDAS • Assessing content • Certifying every decision aid or certifyign producer processes • Establishing new entity or new function for existing entity (e.g. in the US - National Quality Forum; National Committee for Quality Assurance) Alston et al., 2014 Shared Decision-Making Strategies for Best Care: Patient Decision Aids and Beyond. IOM Discussion Paper

  17. http://ipdas.ohri.ca

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