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05/09/08

Building Momentum and Expanding Your Program's Partnerships - Inclusion. Walter L. Shepherd Director NC Comprehensive Cancer Program & Executive Director NC Advisory Committee on Cancer Coordination & Control. 05/09/08. 1. Why I'm Here? While I'm Here.... 479 184.

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05/09/08

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  1. Building Momentum and Expanding Your Program's Partnerships - Inclusion Walter L. Shepherd DirectorNC Comprehensive Cancer Program & Executive Director NC Advisory Committee on Cancer Coordination & Control 05/09/08 1

  2. Why I'm Here? While I'm Here.... 479 184

  3. Two Organizational Models • for CCC Partnerships • Prescriptive • Representation is prescribed, typically through enabling legislation • Collaborative • Representation is selected/elected from among stakeholders

  4. Advantages • Prescriptive • Legislative-connection • Ensures representation of specific organizations • Reduces rivalry among stakeholders • Collaborative • Broad representation • Can ensure greater diversity • Can ensure network for implementation

  5. Almost 50 years to get it right….. 50 Years of Cancer Prevention & Control Planning 1957 The Commission to Study the Cause and Control of Cancer in North Carolina established by the Legislature. 1967 The Co1957 The Commission to Study the Cause and Control of Cancer in North Carolina established by the Legislature. 1967 The Commission to Study the Cause and Control of Cancer in North Carolina made a permanent study commission. 1967 Governor’s Commission to Study the Cause and Control of Cancer convened. 1991 Statewide Coalition for Cervical Cancer Control created. 1992 Study Commission on Cancer Prevention and Control created by the Legislature. 1993 The North Carolina Advisory Committee on Cancer Coordination and Control formally established through legislative action. 1998 Funding provided by CDC to North Carolina as one of fivestates and one tribal health boards to pilot national comprehensive cancer control. 2006 NC Cancer Partnership created t t

  6. North Carolina 1993 • Prescriptive • Long history of government involvement/participation – since 1957 • Major legislative buy-in • Key legislators involved & moved policy agenda • 33 Appointed Individuals • Evolved into a “Small Table” environment • Participants & Spectators

  7. North Carolina 2005-2006 • “In a Rut” • Original members rotated off • Two 5-year Plans completed • 3rd 5-Year Plan was in-process • Interest/participation had diminished • NC CCP was “broken” • Participants & Spectators • No one sure what this process was all about • No accountability to stakeholders

  8. North Carolina April, 2006 • “The Revolution” • Created the NC Cancer Partnership • Initiated the “Big Table” philosophy • Everyone Is Welcome - Inclusion • Abandoned the 5-Year Plan Process • Re-defined what’s important • It’s all about Survivorship • Partnerships must be made; they don’t just happen • Partnerships must be worked everyday

  9. Collaborating to make a difference in the lives of North Carolinians with cancer, their families, and their communities. An opportunity for every Cancer stakeholder to have an opportunity to participate and contribute.

  10. 1993 - 2006 NC Advisory Committee on Cancer Coordination & Control 34 Appointed Members Executive Committee Chair & Vice Chair Subcommittee Chairs & Associates • Subcommittees • Care • Early Detection • Prevention • Evaluation • Legislative/Education 05/09/08 10

  11. 2006 - Present NC Advisory Committee on Cancer Coordination & Control 34 Appointed Members NC Cancer Partnership Open Membership Steering Committee 13 - 15 Members Workgroup Leaders Executive Committee Chair & Vice Chair Subcommittee Chairs & Associates Cancer Workgroups 19 Groups • Subcommittees • Care • Early Detection • Prevention • Evaluation • Legislative/Education Regional Cancer Partnerships 6 Regions 05/09/08 11

  12. Work Groups Created Breast Cancer Gynecological Cancers Childhood Cancers Colorectal Cancer Cancer & Young Adults Lung Cancer Prostate Cancer Skin Cancer Other Cancers Clinical Trials Disparity Palliative Care/Pain Survivorship Worksite Cancer Initiatives Cancer & the Environment Personal Behaviors Genomics Patient Navigation

  13. Work Groups ~12 – 15 Members Representative – Geographic, Demographic, Clinical/Non-Clinical Establish Common Ground Develop Timeline for Activities Survey/Research the Issues/Problems Determine Existing Activities/Resources Coordinate with Other Work Groups Develop Specific Goals, Objectives, Strategies & Evaluation Measures Determine Resources Required Transmit Report to Advisory Committee & Subcommittees Assist with Implementation Review Evaluation Results & Outcomes Revise Goals, Objectives, Strategies 05/09/08 13

  14. NC Cancer Partnership Regions Northeastern North Central Central Pasquotank Camden Alleghany Currituck Northampton Gates Ashe Surry Rockingham Vance Stokes Person Caswell Warren Hertford Granville Watauga Mitchell Wilkes Halifax Forsyth Chowan Yadkin Orange Western Avery Guilford Franklin Bertie Perquimans Alamance Durham Nash Yancey Caldwell Davie Alexander Madison Edgecombe Tyrrell Iredell Martin Dare Davidson Wake Washington Burke Randolph Wilson Chatham Buncombe Catawba McDowell Rowan Haywood Pitt Beaufort Swain Hyde Johnston Lincoln Rutherford Greene Lee Graham Cabarrus Henderson Moore Harnett Jackson Gaston Polk Wayne Stanly Montgomery Cherokee Macon Cleveland Mecklenburg Lenoir Craven Clay Pamlico Cumberland Transylvania Richmond Jones Hoke Sampson Union Anson South Central Duplin Onslow Carteret Scotland Robeson Bladen Pender Southeastern Columbus New Hanover Non-CoC Facility Brunswick ACOS CoC Approved Facility Medical School / Major Academic Medical Center

  15. Inclusion The assurance that the views, perspectives, and needs of all affected communities are included and involved in meaningful manner in the planning/implementation process.

  16. Who Do We Need Most? • Enhance credibility • Implement program change • Advocate program changes • Fund, authorize, expand programs • From Tom Chapel, May 14, 2008

  17. Steps Taken for Inclusion • Give All Stakeholders a Voice...but • Start by Reminding Everyone What It's All About • Answer the Question: “What's in It for Me?” • It’s Not the State’s Plan….It’s the People’s Plan. • Perspective: Focus on a Few vs. Anything Goes • My Plan is Your Plan.; Your Plan is My Plan • A “Living Plan” Should/Can Be Changed as Necessary. • Formal Adoption of Plan by Organizations & Individuals. • Develop Specific Action Plan with Organizations. • Formal Connection with Major and Minor Organizations. • Get the Plan “Out There” - 400 per month, visits, talks, events • Listen, Act, Report • Connect the Dots • CCCP Can Make It Happen – “We're Like Switzerland” • Assume Leadership of Efforts Where There's a Void • Build Capacity Where It's Needed • Eliminate Duplication & Share Resources • Monitor Participation/Participants • Don't Be Afraid to Stick Your Neck Out

  18. Some Results from Inclusion • NC Survivorship Summit • NC Cancer Centers’ Collaborative • NC Oncology Navigator Association • NC Cancer Clinical Trials' Clearinghouse • Pilot Projects/Regions wth Early Adopters • Visits to all CoC (& other) Centers • Incubate and/or Help Create New Organizations • Help Established Organizations Renew Their Efforts • Adoption of Plan by Funding Organizations as Part of RFA Process • Customized Cancer Plan • 19 Work Groups – typically >50% Members Are Survivors/Advocates • www.NCCancer.com • NC Medical Journal Special Issue on Cancer – circ. 36,000 • Community-Based Organizations' Training Initiative

  19. PARTNERSHIPS • American Cancer Society • NCI Cancer Information Service • Comprehensive Cancer Collaborative of NC (CPCRN) • NCI-Designated Comprehensive Cancer Centers (3) • American College Surgeons – Commission on Cancer (38) • Non-approved Cancer Centers (6) • NC Academy of Family Physicians • NC Medical Society • Old North State Medical Society • NC Hospital Association • NC Oncology Society • Komen for the Cure • University of North Carolina • Duke University • NC Cancer Centers' Collaboration (sponsored) • NC Oncology Navigator Association (sponsored) • NC Cancer Clinical Trials' Clearinghouse (sponsored) • Plus many other state & local organizations and agencies

  20. “The Vision” • That North Carolina’s collective effort will enable the state to become the national leader in responding to the many challenges associated with cancer, including: • The promotion of healthy lifestyles & preventive behaviors • The provision of universal access to screening & early detection resources • Patient- & family-centered care that is accessible & affordable • A cancer survivorship approach that is a collaboration between the patient, the family, the community & the health care system • The elimination of all disparities related to access to all resources & services 05/09/08 20

  21. Major Themes in the NC Cancer Plan • Site Specific • Healthy Behaviors – Eating Smart, Moving More; Tobacco Use; Infectious Agents; Alcohol Use • Cancer & the Environment • Genetics • Clinical Trials • Palliative Care – Pain; Hospice; End of Life Care • Data/Surveillance • Professional Education & Awareness • Survivorship • Access to Services • Public Awareness • Cost & Financing

  22. Major Activities in the NC Cancer Plan • Making Cancer Survivorship the Centerpiece • Creating & Enhancing Partnerships – Local, Regional, Statewide • Eliminating Disparities of All Types • Making the Public More Aware & Engaged • Enhancing Professional Education & Involvement • Ensuring an Appropriate Workforce – Quantity, Quality, Distribution • Ensuring Access to All • Increasing Funding & Resources • Increasing Data/Surveillance • Supporting Research & New Technology • Determining & Implementing New Policies

  23. www.NCCancer.com

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