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Designing a digital information platform for people with Atrial Fibrillation

Designing a digital information platform for people with Atrial Fibrillation Insights from AF event 19 December. Headlines. Some general considerations Focusing on the value add Modules/ elements Accessibility Interactive function Tech functionality requirements Metrics

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Designing a digital information platform for people with Atrial Fibrillation

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  1. Designing a digital information platform for people with Atrial Fibrillation Insights from AF event 19 December

  2. Headlines • Some general considerations • Focusing on the value add • Modules/ elements • Accessibility • Interactive function • Tech functionality requirements • Metrics • Integration with other services

  3. Some general considerations • There is lots of information out there – in designing this platform focus on how it will be different and what value it will add. • Think carefully about the aim of the information – is it designed to support knowledge, condition management, psychological support, reassurance, decision making, navigation or a combination? • Support to interpret information is as important as providing information. • Consider how the platform will integrate with other face to face services. • Build metrics in from the beginning to support adoption and scaling. • Link into work around quality standards and expectations for AF services. • Consider accessibility – languages, formats, touchpoints, integration with face to face service offer. • Be careful about disease specific information in context of high levels of multiple conditions. • The journey isn’t linear – people can go in and out of ‘crisis’ at any point.

  4. Focusing on the value add • Gathers existing information in one place and provides intelligent signposting to existing services and resources. • Interactive function enables personalised access to information. • Information is ‘humanised’ with anecdotes/ stories to help people to understand/ interpret quantitative information and statistics. • Provides access to credible information sources through for example videos of consultants/ EPs talking about AF. • My ‘AF diary’ function allows people to track their condition. • Interactive function produces personalised remindersand flags for patients and professionals. • Provides information on local services. • Can produce a print-out of patient notes/ condition history for patients to take with them to appointments.

  5. Modules/elements • Simple explanation of AF. • Information/ interface/ support group for key carers as well as AF patients. • Interactive personalised information on: • Therapies and options (particularly around procedures and medication) • Risk factors (particularly around procedures and medication). • Possible pathways. • Lifestyle-related considerations and information. • How to promote/ maintain positive thinking and good mental health. • What to do if you think that therapy is not working.

  6. Modules/ elements • Signposting to 24/7 helpline and other face to face services. • Access to a moderated and recognised forum. • Stories and case studies in visual as well as written form. • Map of services available in my local area. • Care planning. • News and events. • My AF diary. • A set of key questions (designed with patients) as prompts for patient-professional conversation and information and guidelines about how to get the most out of interactions with professionals.

  7. Accessibility • Links up with different services (e.g. A&E, pharmacy, care homes, GPs) to promote access. • Targets key carers as well as AF patients. • Uses segmented marketing strategies tailored to different possible users (e.g. texts/ emails with different straplines: hear from xxx cardiologist about AF; link up with other people with AF; find out how to lead a positive, active lifestyle with AF).

  8. Interactive Function • Interactive consultation leading to personalised information on treatment options and risk factors. • Personalised signposting to relevant information on the site. • Track your condition through ‘My AF Diary’ function (could this have algorithms which flagged at risk people?). • Ongoing prompts, reminders and flags to patients, carers and professionals informed by patient interaction with platform.

  9. Tech functionality requirements • Individual log-in function. • Secure management of information input by users. • Anonymised data capture from user interactions with platform. • Algorithms underpinning interactive consultation, personalised signposting to information, flags and follow up. • Interface with professionals i.e. texting and email to generate follow up and flags for users and professionals • Stratified website by: point in pathway, level of detail they want, their beliefs, their treatments.

  10. Metrics • Capture visits and usage stats. • Capture (anonymised) data from interactive functions of the platform. • Voting buttons. • Survey. • PREMS study with users of the platform – baseline and follow up. • Analyse NHS data alongside platform interactions for a cohort of users.

  11. Integration with other services • Does the platform need a helpline? • Does the platform need a wider expert taskforce? When would this be used? • Which IT systems would it need to integrate with? GPs, warfarin clinics, care homes? • At what point would someone be enrolled onto this?

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