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Using Social Media in Research: Privacy, Trust, & Ethics

Using Social Media in Research: Privacy, Trust, & Ethics. Dan O’Connor, PhD Head of Humanities & Social Science @drdanoconnor. Facebook “Scandal”. Outline. Types of social media research Some examples Ethical challenges (old and new) Overcoming the challenges.

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Using Social Media in Research: Privacy, Trust, & Ethics

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  1. Using Social Media in Research:Privacy, Trust, & Ethics Dan O’Connor, PhD Head of Humanities & Social Science @drdanoconnor

  2. Facebook “Scandal”

  3. Outline • Types of social media research • Some examples • Ethical challenges (old and new) • Overcoming the challenges

  4. Types of Social Media Research • Research using social platforms • or • Research ‘into’ social content

  5. Research Using Social Platforms

  6. Research into Social Content

  7. Surveillance / Monitoring / Listening

  8. “The Case of the Tweeting Kidney Patient”

  9. Mental Health and Twitter

  10. The Slash Fiction Farago of ‘09 “And so we decline to be interviewed by you; we decline to be the objects of your fascination; we decline to be naturalized; we decline to allow our political project to be cited in support of the very discourses we are trying to question” http://eruthros.dreamwidth.org/273840.html

  11. Big Issue: PRIVACY

  12. Regulation Academic Bit • Daniel Solove: • “A Taxonomy of Privacy”, 154 U. Pa. Law Review. 477 (2006) • Understanding Privacy (Harvard UP, 2004)

  13. Solove’s Taxonomy • Information Collection • Information Processing • Information Dissemination • Invasion

  14. A new new taxa: “Self-Exposure” • Patricia Sanchez-Abril & Anita Cava, “Health Privacy in a Techno-Social World: A Cyber-Patient's Bill of Rights”, 6 Nw. J. Tech. & Intell. Prop. 244 (2008).

  15. Expectations of Privacy

  16. Expectations of Privacy • Do social media users have a responsibility to protect their own privacy? • What responsibilities do researchers have to respect social media users’ privacy?

  17. http://xkcd.com/386/

  18. Approaches / Solutions • Transparency (be open! be honest!) • Community involvement (be social!) • Wheaton’s Law (“don’t be a d**k”)

  19. d.oconnor@wellcome.ac.uk @drdanoconnor

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