“Caldicott2” & Multi-Agency Information Sharing

1. “Caldicott2” & Multi-Agency Information Sharing HC2014 20th March 2014 Dr Alan Hassey - IIGOP

2. Information Governance Review • Mandate : • how information may be safely shared and better utilised to support the care of individuals & the wider population • that information governance needs to enable this sharing whilst also protecting individuals’ confidentiality and respecting their wishes • Report published in April 2013 • Government response published Sept 2013

3. Key message - the culture needs to change • Reduce the harm caused by not sharing • Clinicians to use clinical judgement on sharing decisions • Greater trust between health and social care • New duty to share • New principle: • The duty to share information can be as important as the duty to protect patient confidentiality

4. The final report • The panel wished the final report to: • Enhance trust • Better balance the risks of failure to maintain confidentiality, and failure to share • Simplify information governance, and for it to be seen as more closely aligned to clinical governance, not as a technical issue • 7 Caldicott Principles • 26 Recommendations

5. Where we are • The review report was published last April • Gov’t has accepted the report recommendations & The ambitions of this response are that: • everyone will feel confident that information about their health and care is secure, protected and shared appropriately when that is in their interest • people will be better informed about how their information is used and shared while they are receiving care, including how it could be used in anonymised form for research, for public health and to create better services • if people don’t want their information to be shared in this way, they will know how to object if they want to • people will be increasingly able to access their own health and care records

6. HSCIC Guidance • HSCIC guidance (S265 of H&SC Act) • A Guide to Confidentiality in Health & Social Care • http://www.hscic.gov.uk/confguideorg • 5 rules • Rule 1: Confidential information about service users or patients should be treated confidentially and respectfully • .Rule 2: Members of a care team should share confidential information when it is needed for the safe and effective care of an individual • Rule 3: Information that is shared for the benefit of the community should be anonymised. • Rule 4: An individual’s right to object to the sharing of confidential information about them should be respected. • Rule 5: Organisations should put policies, procedures and systems in place to ensure the confidentiality rules are followed.  

7. Independent IG Oversight Panel (IIGOP) • Oversight of IG in health and care system • Independent • Reporting directly to SofS • Progress on implementing the Caldicott recommendations • Advice and challenge to the system

8. Key Areas of Focus • Developing an IG knowledge and information service • Commissioning • Legislation development (EU data protection regs., law Commission review, Cabinet Office consultation - e.g. for research & Public Health ) • Consent management (e.g, IT system consent flags to record sharing decisions) and • Accredited Safe Havens

9. Next Steps • In parallel to providing advice and challenge, we are focusing efforts on obtaining the patient/service user's voice and working with the HSCIC C2 Implementation Monitoring Team • Both will help IIGOP to obtain intelligence on the state of IG in health and social care in England, in preparation for our first annual report to Secretary of State for Health

10. Thank YouAny questions?