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San Diego Support Group Meeting

San Diego Support Group Meeting . Saturday February 15 th , 2013 1:00-3:00pm. Welcome!. Please help yourself to some food Find a seat Say hi to the people around you We will being shortly… Thank you. Thank You!!. Dr. Fatta Nahab Lissette Moreno Medtronic . Support Group.

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San Diego Support Group Meeting

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  1. San Diego Support Group Meeting Saturday February 15th, 2013 1:00-3:00pm

  2. Welcome! • Please help yourself to some food • Find a seat • Say hi to the people around you • We will being shortly… • Thank you

  3. Thank You!! Dr. FattaNahab Lissette Moreno Medtronic

  4. Support Group • Carolina Conway • Support Group Leader • (714)865-3377 • carolina.conway@yahoo.com • http://sandiegoessentialtremor.weebly.com • Meetings quarterly • Next one around Jan-Feb • March?

  5. Introductions • Get to know everyone: • Name • Where are you from • Your ET • Something new you would like to learn about ET

  6. Guest Speaker: JoAnn DBS patient

  7. Essential Tremor News

  8. March: Essential Tremor Awareness Month • What is ET awareness Month? • Should we have a special group meeting in March?

  9. How to bring awareness? • Hold an open house. • Post messages on Facebook and Twitter • Write about ET on a blog • Host an ET awareness dinner party

  10. Essential Tremor Walk • Saturday, March 22 • Designated as a day to walk for ET • Register in the IETF website and get a free shirt with a donation of at least $30 .

  11. Essential Tremor Research

  12. Future Therapies • “Based on the knowledge that alcohol (ethanol) is the most successful tremor suppressant, efforts are underway to determine whether longer chain alcohols can suppress tremor without causing intoxication.” - Nahab, et al. neurotherapeutics 2011

  13. Essential Tremor Technology

  14. Lift Pulse

  15. Adapted Technology

  16. Websites • http://www.infogrip.com • http://www.wrightstuff.biz/onmove.html • http://www.magnaready.com/shop/home.php • http://essentialtremor.org/treatments/assistive-devices/

  17. Next Meeting • Suggestions? • People you would want to hear from? • Other things you may want to cover? • Other topics? • Thank you!!

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