INTRODUCTION

2. INTRODUCTION • This presentation is made up of three elements: • What was available to survivors before the Clubhouse • What the Clubhouse is/does • How people’s lives are improved by participating in the Clubhouse

3. Brain injury Hospital Rehabilitation Services ? ? ?

4. What Happened to My Life? • The survivor has very structured, intensive care, then services end. The survivor sometimes experiences this as an abrupt ending to their recovery. • There is often intensive support from family and friends, but the survivor can return to the role of child in the family, impeding moving on to next steps. • The survivor can lose important markers of identity – worker, friend, partner, parent. • Eventually, the role of “patient” also ends, leaving another hole in the survivor’s identity. Progress can slow, and the survivor can become isolated.

5. Social Services not geared for TBI Survivors Resource Management Services Private Rehabilitation Services Rehabilitation Hospitals Supportive Services for TBI Survivors TBI Resource Line TBI Council and TBI Fund Western State Hospital Employment Services Not Geared for TBI Survivors Seattle BrainWorks BIAWA TBI Support Groups

6. How Seattle BrainWorks Began • Advocacy addressing the gap in community-based services for TBI survivors • TBI Clubhouse pilot contract was awarded to PROVAIL in November, 2009 • Seattle BrainWorks opened March 1, 2010.

7. THE CLUBHOUSE MODEL • Based on a model started in 1948 for people with psychiatric disabilities • Follows International Brain Injury Clubhouse Association (IBICA) Standards - Member-driven - Productivity focus - Breaking down tasks into manageable parts • Only 16 IBICA brain injury clubhouses in the world

8. SCHEDULE • 9:00am – 3:00pm, Tuesday-Friday • Each member commits to a schedule to participate in the Clubhouse • Structured, day-long, work-related activities — the Clubhouse is a member-driven place of work

9. GOAL-SETTING WITH INDIVIDUALIZED SERVICE PLANS • Initial assessment • Individualized Service Plan (ISP) that can include family, friends, and service providers • Goal-setting around increasing productivity and work skills, home and community support, and socialization • Ongoing progress check-ins

10. KITCHEN UNIT

11. BUSINESS UNIT

12. LUNCH AND SOCIAL ACTIVITIES

13. ADVOCACY AND TUESDAY WEEKLY MEETING Supporting SHB 1614 at the State Capitol in 2011 Tuesday Weekly Meeting

14. WHO MEMBERS ARE Gender 70% male 30% female Age 18-24 – 10% 25-44 – 38% 45-64 – 49% 65+ – 3% Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.

15. WHO MEMBERS ARE Ethnicity 84% White 5% Mixed or more than one identified 2.6% Hispanic 2.6% Asian 2.6% Filipino Education Grade School – 2.5% High School Graduation or GED – 22.5% Some College – 5% Technical Training – 27.5% Associates Degree – 10% Bachelors Degree – 17.5% Masters Degree – 7.5% Doctorate or Professional Degree – 2.5% Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members with 2 members not indicating their ethnicity or education.

16. TYPE OF BRAIN INJURY Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.

17. PHYSICAL/COMMUNICATION CHALLENGES Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.

18. THINKING/BEHAVIORAL CHALLENGES Demographic data collected by self/caregiver report upon member’s entry to program – sample size 40 members.

19. PARTICIPATION Demographic data collected by self/caregiver report upon member’s entry to program and member satisfaction survey- sample size 26 members.

20. CHALLENGES • Funding • Difficulty for TBI survivors to break out of isolation and seek support • Emotional dysregulation sometimes makes for challenging group dynamics • Groups, bright lights, and noise can be overstimulating for survivors

21. THINKING AND SOCIALIZATION SKILLS

22. SUCCESSES • Our members are making progress! • More time spent in the program, reducing isolation: • Members now spend 93% more hours at the Clubhouse than they did 1 year ago. • A year ago, we had an average of 6.5 members per day; now see an average of 11 per day. • Being involved: 58% surveyed feel “very much so” or “completely” involved in decision-making at the Clubhouse. Another 26% feel “somewhat involved.” • Social skills: 50% surveyed feel that the program has helped them “a lot” in increasing socialization skills, (interacting with peers, making friends). • Thinking skills: 42% surveyed fell that the program has helped them “a lot” in increasing skills in thinking (attention, problem-solving).

23. SUPPORT • The TBI Community has supported the Clubhouse • Strong, dedicated Advisory Board • Generous, growing donor support • Collaboration with BIAWA and others in brain injury community • Mentoring from IBICA Clubhouse network and local Clubhouse supporting people in recovery from mental health issues • A committed, supportive home at PROVAIL

24. TELL ME ABOUT THE STAFF! • Erin Rants, Program Director – Background in direct service with families experiencing homelessness. Has a sibling with a TBI. Master of Social Work from University of Washington. • Jamie Johnson, Floor Coordinator – Completed nine-month internship in TBI Clubhouse in Virginia. Bachelor of Arts in Social Work from Christopher Newport University in Newport News, Virginia.

26. Website: seattlebrainworks.org Contact: Erin Rants (206) 826-1072 erinr@provail.org