1 / 12

Human Genetics: Ethical, Legal and Social Issues

Human Genetics: Ethical, Legal and Social Issues. The American Society of Human Genetics Dr. Joann Boughman, PhD, Executive VP. Genetics. Important to everyone All consumers/patients Your family history story Your medical history Scientists and consumers alike.

nam
Download Presentation

Human Genetics: Ethical, Legal and Social Issues

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript


  1. Human Genetics:Ethical, Legal and Social Issues The American Society of Human Genetics Dr. Joann Boughman, PhD, Executive VP

  2. Genetics • Important to everyone • All consumers/patients • Your family history story • Your medical history • Scientists and consumers alike

  3. Characteristics of Genetic Data Genetic information is: • Personal • Permanent • Predictive • Prejudicial • Pedigree-sensitive

  4. Uses of Genetic Tests • Diagnostic (adjunctive, prognostic, treatment) • Predictive(prognostic, intervention, planning) • Screening(newborn, selected population, carrier) • Pharmacogenetic (individualized medicine)

  5. Issues Ethical Legal Social Actions Regulatory Legal Social Context

  6. Privacy Right to prevent information from disclosure Condition of limited access to a person A B

  7. Confidentiality • Right to prevent redisclosure of information developed in a confidential relationship A B C

  8. Issues: • Predictive testing • Probabilistic answers • Privacy & Confidentiality • Informed consent • Equitable access • Discrimination

  9. Insurance Employment Disability Medical care Lifestyle Family/children Insurance Obligations to employees Responsibilities of others Long-Term Effects

  10. Genetics is a Family Affair • Obligations TO relatives • Obligations OFrelatives

  11. Potential of GENETIC TESTING • Only as beneficial as the processAND the application of the information obtained.

  12. The Success of Genetic Medicine Depends on… • Accurate transmission of complex and predictive information given to individuals (and appropriate others).

More Related