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Introduction to Parkinson’s

Introduction to Parkinson’s. Gemma Burgin. Agenda. What is Parkinson’s? What does it look like? The effects of Parkinson’s Supporting people with Parkinson’s and their carers Trouble shooting Medication Summary. What is Parkinson’s?.

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Introduction to Parkinson’s

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  1. Introduction to Parkinson’s Gemma Burgin

  2. Agenda • What is Parkinson’s? • What does it look like? • The effects of Parkinson’s • Supporting people with Parkinson’s and their carers • Trouble shooting • Medication • Summary

  3. What is Parkinson’s? • A neurological syndrome or disease caused by a lack of dopamine within the brain. • It is incurable, degenerative and eventually impacts on all aspects of daily life. • Dopamine is a neuro transmitter which ensures smooth movement of muscles. • Symptoms of Parkinson’s begin to surface once 80% of the dopamine producing cells have died.

  4. What is Parkinson’s?

  5. What does Parkinson’s look like? • SLOWNESS* (bradykinesia) • STIFFNESS* (rigidity) • TREMOR* • POSTURAL INSTABILITY* • STOOPED POSTURE • SHUFFLE • LACK OF ARM SWING WHEN WALKING. • LACK OF FACIAL EXPRESSION • DEPRESSED OR LOW IN MOOD

  6. The early stages of Parkinson’s Diagnosis/ Early Raise awareness and self management Education and consider therapy input Reduce symptoms and distress Acceptance of diagnosis Maintenance Promotion of normal activities. Maintenance of function and self care. Consider therapy referral Assess carer needs Symptom reduction, treatment compliance

  7. The later stages of Parkinson’s Complex Adaptations to promote self-care Optimise symptom control/compliance with meds Assess for complications of medication and fluctuations MDT input/Annual review/Carer support Minimisation of disability Palliative Relief of symptoms Absence of distress/Carer support Maintenance of dignity Good nursing care. Analgesia, appropriate sedation, pressure care, continence, mouth care, communication.

  8. The effects of Parkinsons. • Described in two ways…. • MOTOR SYMPTOMS (physical capability) • NON-MOTOR SYMPTOMS affect anything within the body which is governed by muscles. • Symptoms will fluctuate from day to day and throughout the course of the day and night

  9. Walking • Talking, communicating in a group, social isolation and embarrassment. • Non-verbal communication, lack of vocal tone. Facial expression • Swallowing/saliva control . Eating in public. • Bladder and bowel control • Writing • Buttons, zips • Concentration, motivation, low mood • Sleep problems • Dementia, hallucinations

  10. Parkinson’s Nurse Service • I am the specialist nurse for people who see Dr Liddle, Dr Samaniego and Dr Kappur. • I can be contacted on 07970351584. Please leave a message and I will get back to you as soon as I can within a few days. • These are elderly care physicians with specialist interest in Parkinson’s. We tend to look after people with multiple co-morbidities. • There is a team of nurses at RHH who work with the neurology consultants who deal with a range of movement disorders. • Their number is 0114 2711704

  11. Supporting people with Parkinson’s and their carers. • Listen to and support those closest to the person with Parkinson’s… they are often the experts. • Educate home care workers • Be patient. Give time…..Easier said than done I know! • Refer to specialists if you identify any difficulties with speech, swallow, dietary intake and obviously physio. • For freezing, use techniques of queuing….marching, counting, something which creates a rhythm.

  12. Troubleshooting • THINGS TO CHECK…. • Do they have a UTI? • Are they constipated? • Have they been getting their medication? • Any changes to their medication lately?

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