safeguarding people with dementia: building up evidence based policy and practice

1. safeguarding people with dementia: building up evidence based policy and practice jill.manthorpe@kcl.ac.uk

2. Taken for granted? • Dementia syndromes increase vulnerability to abuse, mistreatment and neglect • Dementia decreases discovery, disclosure and detection • Dementia increases risks of false positives and false negatives • Dementia leads to over protection

3. Policy pile ups • 2008 Review of No Secrets • 2008 Dementia Strategy • 2008 Safeguarding Vulnerable Groups Act • 2007/8 Personalisation • 2008 Review of Adult Social Care funding • 2007 Mental Capacity Act

4. practice • Legislation covering discrimination, crime, human rights, public safety, at population and sub population levels • Underpinned by public services, market regulation, professional duties, enforcement and inspectors, partnerships, education • Augmented by advice, advocacy, professional services/therapy

5. Secondary • Rights and duties to investigate, share data, override other general duties • Support for alleged victims and perpetrators • Surveillance, risk assessments, screening • Codes of practice, policies and procedures

6. Tertiary • Legal remedies – future prevention • Therapeutic responses • Interventions, harm minimisation • Support for victims (and others), recovery and survival

7. Building up policy evidence New offences under MCA • Early cases • Evidence and records • Decision making • Postvention – recovery and survival • Cultural or organisational impacts

8. Building up practice evidence • Recording casework • Recording case conferences • Critical incident analysis • Serious case reviews • Complaints and comments • Wider consultations • Staff views • What worked and what would have been helpful

9. Dementia specifics • Role of care navigator or similar • Opportunities to raise the issues • Medication abuse • Neglect -thresholds • End of life care • Role of IMCAs

10. Building up Plans Foundations Bricks Mortar