Researchers in the Field of Intellectual and Multiple Disabilities

1. Name (institution) • PhD student (year) • Research topic(s): • Topic • Topic • Experiences with: (e.g. research methods, … • Topic • Topic • In search of: • Topic • Topic • Expectations ECR-meeting: • Topic • Topic

2. Leontien Bossink (University of Groningen, the Netherlands) • PhD student (3rd year) • Research topic(s): • Motor Activation of people with PIMD • Effectiveness of motor interventions • Role of direct support person • Experiences with: (e.g. research methods, … • Multilevel analysis, repeated measures • Qualitative methods; interviewing • In search of: • Knowledge about test construction • Exchange of knowledge on PIMD in general • Expectations ECR-meeting: • Inspiration, motivation and learning from other researchers.

3. Saskia Damen (University of Groningen) • Assistant professor (PhD study finished in 2015) • Research topic(s): • Congenital deafblindness / dual sensory loss and ID • communication • Experiences with: (e.g. research methods, … • Single case experiments • Observation studies • In search of: • Ways to assess self-advocacy in social interactions of individuals with multiple disabilities • Info on longitudinal study designs • Easy to use (technological) methods that can be used by communication partners to evaluate the communication with the participant • Expectations ECR-meeting: • Exchange of ideas • Tips and tricks

4. Diane Willis (Edingburgh Napier University, Scotland) • PhD student (year) completed • Research topic(s): • Cancer and intellectual disability • Rights • Health and bereavement • Experiences with: (e.g. research methods, … • Quantitative stats and surveys • Qualitative ethnography, thematic analysis • In search of: • Ethical issues in research ..... Giving the voice back to people • Shared learning and interest • Expectations ECR-meeting: • Find out more • Networking – joint collaboration

5. Marieke SteendamRoyal Dutch Visio, centre of expertise for blind and visually impaired people • PhD student (year) Occupational Therapist doing research in a project • Research topic(s): • Analysis of data from Visual Assessments of children with PIMD in regards to Cerebral Visual Impairment • Compiling a Visual Assessment Scale for CVI-PIMD children • Experiences with: (e.g. research methods, … • Descriptive (books on CVI) • In search of: • ? • Expectations ECR-meeting: • Meeting other “new” researchers

6. Jana Kadastik(Tallinn University, Estonia) • PhD student: 2011 • Research topic(s): learning tools ( everyday things) for pupils with PIMD • Experiences with: (e.g. research methods, Design research -user centered design-mixed methods • In search of: focus on pupils with PIMD: how to evaluate the user experience and create learning tool • Expectations ECR-meeting: • Learn what other people are doing • Build networks • Presentation (film “Searching for solutions”)

7. Leentje van Alphen (Department of Special Needs Education and Youth Care, University of Groningen, the Netherlands) • PhD student (2015- 2019) • Research topic(s): • Development and implementation of a program to promote structural and specific motor activation in the support of people with PIMD • Experiences with: (e.g. research methods, … • Program development, review study, Actiwatch data • In search of: • People working in the same area • Knowledge about physical activity or lifestyle and PIMD • Expectations ECR-meeting: • Build networks • Learn from others

8. Tracey Woelms (La Trobe University (Melbourne) • PhD student commencing May 2016 • Research topic(s): • People with intellectual disability and multiple complex support needs who are transitioning from large residential centres to community living • Mainstream health sector capacity to provide primary care • Experiences with: Topic • Topic • In search of: • Care coordination trials for similar cohorts • Efficacy of models of primary health care for similar cohorts • Expectations ECR-meeting: • Networking • Sharing lessons learnt

9. Meredith Prain (Deakin University) • PhD student (2012) • Research topic(s): • Deafblindness • Profound Intellectual and Multiple Disability • Video feedback interventions • Experiences with: (e.g. research methods, … • Qualitative methods • Mixed methods • In search of: • Research collaboration opportunities • New knowledge, new networks • Expectations ECR-meeting: • Inspiration and motivation – being around like minded researchers

10. Rebecca Monteleone (Arizona State University – previously Tizard Centre, University of Kent, USA) • PhD student (Year 1) • Research topic(s): • Conceptualizations of disability among populations with ID • Formalizing the involvement of individuals with ID in the research and development of practices and technologies • Experiences with: • Qualitative research, especially phenomenological analysis • Interviewing adults with intellectual disabilities • Disability rights movement • In search of: • Techniques and best practices for collaborative research • Best practices for qualitative research with individuals with PIMD and/or alternative communication methods • Expectations ECR-meeting: • Network with researchers with similar research interests

11. Lena Talman (Schoolof Health, Care and Social Welfare (HVV), Mälardalen University, Sweden) • PhD student (2012) • Research topic(s): • The overall aim is to highlight and problematize conceptualisation of participation, how participation is achieved in everyday life and in implementation plans for adults with PID living in group homes or in private accommodation with personal assistance. • Experiences with: • Descriptive statistics • Phenomenography • In search of: • Knowledge regarding participant observation (e.g. how can I observe participation in daily activities) • Expectations ECR-meeting: • To meet others • Knowledge about ongoing research

12. Gertruud Schalen (University of Groningen, The Netherlands) • PhD student (2015) • Research topic(s): • Motor development of young children with a high risk to become persons with PIMD. • Experiences with: • Some experience in scale development: • Item response theory, Principal component analyses. • Observation/various assessment tools / video coding (not yet with persons with PIMD) • In search of: • How to use video observations / questionnaire • Expectations ECR-meeting: • Meeting other researchers in the field - establishing long lasting network • Inspiration, new insights in methods of research

13. Hilary Johnson (La Trobe University Living with Disability Research Centre & Scope’s Communication & Inclusion Resource Centre, Victoria , Australia) • PhD 2012 • Research topic(s): • Social networks and interaction for community inclusion ( my research tends to be more with adults with severe , rather than profound ID who use some augmentative communication ) • Experiences with: • Grounded theory- and qualitative methods • In search of: • People working in the adult area- including people with PMLD in everyday decision making • Expectations ECR-meeting: • Learn what other people are doing • Build networks

14. Sheridan Forster (Lecturer: RMIT University; Adjunct Research Fellow: Monash University; Private practice speech pathologist, Australia) • PhD completed 2011 • Research topic(s): • Interactions between disability support workers and adults with PIMD • Affect attunement • Quality for people with PIMD • Experiences with: • Observation/video coding / various assessment tools • Phenomenology • Opinion pieces to explore issues impacting lives of people with PIMD • In search of: • Methods for supporting culture change to enable positive interactions to occur • Expectations ECR-meeting: • Networks • Hearing about practices

15. Jane Remington (Gurney, Griffith University, Australia) • PhD Candidate completing by end of 2016 • Research topic(s): • Communication partner training • Complex communication needs • Experiences with: • Qualitative • Discourse Analysis • In search of: • Recognition afforded to communication assistants for their work • A Post Doc. opportunity to progress my research • Expectations ECR-meeting: • Networking • Learning

16. Ines Van keer (KU Leuven, Belgium) • PhD student (2nd year) • Research topic(s): • Contextual factors influencing the development of young children with a significant cognitive and motor developmental delay •  Parent-child interaction • Experiences with: • Coding of observational data • In search of: • Definition of target group ‘children with PIMD’ • Sequential coding schemes/protocols • Expectations ECR-meeting: • View on current research topics • Opportunities for international discussion and exchange

17. Sanne Everaarts (University of Groningen, The Netherlands) • PhD student (started in September 2015) • Research topic(s): • Inclusive Education • PIMD • Experiences with: • Interviews • Review • In search of: • More knowledge about qualitative and quantitative research methods • More knowledge about inclusive education for children with PIMD in different countries • Expectations ECR-meeting: • Meeting other Early Career Researchers in the field of PIMD • Acquiring knowledge about qualitative and quantitative research methods and about different research topics in the field of PIMD

18. Name (institution) • PhD student (year) • Research topic(s): • Topic • Topic • Experiences with: (e.g. research methods, … • Topic • Topic • In search of: • Topic • Topic • Expectations ECR-meeting: • Topic • Topic