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Public Health England: opportunities for better coverage?

Public Health England: opportunities for better coverage?. Professor John Newton , Chief Knowledge Officer, Public Health England. Current congenital anomaly registration across England.

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Public Health England: opportunities for better coverage?

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  1. Public Health England: opportunities for better coverage? Professor John Newton, Chief Knowledge Officer, Public Health England

  2. Current congenital anomaly registration across England • Only 49% of births are currently monitored by 7 regional registers. • Currently inequitable registration and surveillance of congenital anomalies across the population. • Unable to provide comprehensive outcome data for screening programmes in England

  3. Public Health England’s mandate • Chief Medical Officer’s2011 annual report: • “Public Health England must ensure nationwide coverage of the congenital anomaly register.”

  4. Expanding coverage of congenital anomaly registration across England • Creating 5 new regional teams to cover: • North West • East of England • South East • London • Yorkshire and Humber • In National Cancer Registration Service (NCRS) offices: • IG framework in place to collect patient identifiable data

  5. Establishing a federated model

  6. Opportunities

  7. Our vision

  8. Working within the UK and European context • Potentially close links with Genomics England • European and International interoperability

  9. National data system and data collection • Single data system developed to provide: • a high degree of electronic data capture • timely data collection • local and national data feeds • improved quality assurance • timely feedback to clinical teams • System and collection based on NCRS model

  10. Postnatal • Childhood • Later onset • Antenatal Care • Birth • Congenital Anomalies • Rare Diseases

  11. A general model for health surveillance Surveillance in PHE

  12. High level timescales and key next steps • March 2015New regional teams established, migrate existing registration staff, new data management system in place • April 2015: National CAR operational • December 2015: Rare disease data sharing arrangements in place • December 2016: Patient portal in place

  13. Presentation title - edit in Header and Footer

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