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Meeting the Challenge of Dementia: The Role of Professionals with Alzheimer Associations

Meeting the Challenge of Dementia: The Role of Professionals with Alzheimer Associations. Istanbul 1 October 2005 Nori Graham Hon Vice President of ADI. A few facts about ADI. Founded in 1984 in the US Secretariat in London Currently 75 national members One member per country

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Meeting the Challenge of Dementia: The Role of Professionals with Alzheimer Associations

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  1. Meeting the Challenge of Dementia:The Role of Professionals with Alzheimer Associations Istanbul 1 October 2005 Nori Graham Hon Vice President of ADI

  2. A few facts about ADI • Founded in 1984 in the US • Secretariat in London • Currently 75 national members • One member per country • Officially affiliated to WHO

  3. ADI - Key goals • To build and strengthen Alzheimer associations throughout the world so that they are better able to meet the needs of people with dementia and their carers • To raise world awareness about Alzheimer's Disease and the other dementias

  4. How ADI achieves its goals • Provides information - web site, newsletter, fact sheets • Runs Alzheimer University courses • Holds an annual conference • Co-ordinates World Alzheimer's Day - Sep 21 • Encourages international research

  5. What do national Alzheimer associations do? • Give information and advice • Run self-help/support groups • Provide training courses • Advocate on behalf of people with dementia and carers • Run services • Raise public awareness • Assist in the development of public policy issues • Encourage research

  6. What can professionals offer? • Status • Resources • Network • Expertise • Experience • Can afford to be altruistic

  7. Pitfalls for professionals • Want to turn association into one for professionals rather than one mainly for patients and carers. • Lack of real understanding of the purpose of association • Conflict of interests • Not always sensitive as to when to stand back /let go • Use organisation for own agenda - conscious/unconscious

  8. Benefit to professionals • Provides useful clinical insights • Improves services to patients and carers • Research benefits - access to the membership, possible source of money • Helps patients and families to feel understood • Useful link for advice on service delivery/development • Strengthens the hand with policy makers

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