Supporting Patient Advocacy in the Pharmaceutical Industry: The Advocate

1. 2021 ADVOCATE Supporting the Patient Voice Developed by The Brooks Group innovate | implement | impact

2. The Advocate: Supporting The Patient Voice • The Advocateseeks to: • Serve as the beacon for the Pharmaceutical Advocacy community to understand the needs of their customers • Distill how each organization is viewed by the advocacy community to drive internal organization discussions & change • Provide benchmarking data to the Pharmaceutical industry to track year over year success We do this through our yearly syndicated market research assessment that has been in the market for 10 years, growing & evolving with our sponsors and Advocacy partners

3. The History of The Advocate: Supporting the Patient Voice • STAR: Successfully Targeting Advocacy Relations • 7 Years in Production • 2010 – 2017 • Joint Venture Between MK&A & The Brooks Group • JV ended in 2017 • Launched The Advocate: Supporting The Patient Voice in 2018. • 19 Therapeutic Areas • Focus on Programmatic Support & Policy Support • Respondents Include Advocacy Organizations & Professional Associations • Limit responses by individuals per organization to not skew the data set

4. Research Approach For 2019/2020 (last Year) • Benchmark data were collected from online surveys with 103 patient organizations and 37 professional associations across 18 different therapeutic areas, as well as with groups not focused on specific conditions. • Additional insights were gathered through 45-minute follow-up interviews with 21 organizations. • Quantitative and Qualitative data was collected in October – December 2019. 2019/2020 Data

5. Programmatic Support Tactics (Previous Year’s Focus) Disease Awareness & Education:Collaborating with your organization on disease awareness and education initiatives (i.e., awareness days, public relations/communication activities, social media campaigns, etc.) Sponsorship of Conferences or Symposia: Providing support for your organization’s conferences/meetings/symposia (meeting sponsorship, attendance by company representatives, exhibits, etc.) Exchange of Scientific Information: Keeping your organization abreast of the latest scientific/medical information in your disease/focus area Coalition Support: Building coalitions to advance and connect stakeholders in your therapeutic areas of focus Advisory Boards: Sponsoring advisory boards, working groups, roundtables, etc. with organizations in your disease/focus area to address issues facing the community Patient Access: Providing information on insurance coverage options and treatment access Treatment/Practice Guidelines: Providing support for evidence-based research and studies to determine and articulate standards of care and practice guidelines Research Support: Supporting your organization’s research initiatives Patient Input: Engaging with your organization to obtain the patient perspective on the company’s educational and support programs for patients and their caregivers/family members Clinical Trial Support: Involving your organization in the company’s drug development programs and clinical trials to provide the patient perspective and assist with clinical trial recruitment and awareness efforts Patient Assistance Programs: Providing financial assistance, discounts, and programs to your constituents to make treatment more affordable Patient Registries: Assisting with the development and/or support of patient registries whether providing expertise, resources, or financial assistance

6. Policy Support Tactics (Previous Year’s Focus) Policy Forums: Sponsoring educational forums on healthcare policy with expert speakers Comment Development: Informing your group about opportunities to provide comments to federal agencies, CMS, and other entities Government Communication: Education and awareness on how to best develop communication materials for use with government officials Policy Briefings: Providing policy briefs on key healthcare topics impacting your constituents Capitol Hill Day: Sponsoring advocacy days on Capitol Hill State Legislature Day: Sponsoring advocacy days at relevant state legislatures Access Education: Educating your group about public and private coverage options (Medicare, Medicaid, Commercial Insurance) Payer Engagement: Educating and raising awareness of issues impacting insurance coverage at the national and local level regarding formulary exclusions, step edits, etc. and assisting organizations with communication and interactions with the payer community

7. What Sets THE ADVOCATE Apart? We balance between programmatic support & policy support tactics while also having corporate reputation as a component. We focus ONLY on what is influenced by the advocacy groups within pharma. We limit the number of responses from an organization to 1-2. This ensures integrity of the data by not allowing one organization to complete multiple times and therefore skew the data. 01 Limit Responses Topic Areas 04 02 We hand select panelists who have completed an online survey and invite them to a 45-minute telephone interview to dive deeper into their survey responses. This allows us to obtain robust feedback for our sponsors. The survey is closed to the public and sent out to our panelists by email invitation only. This ensures we are targeting the correct audience and do not engage with patients due to the compliance issues that can arrise. The panelists are paid an honoraria for their time in completing the survey. Qualitative Interviews Closed Survey 03

8. 2019 / 2020 The 2020/2021 Shift: To Stack Rank or to Not Stack Rank Focusing on The Issues at Hand

9. 2020 was Like No Other Year • Issues • Lack of engagement with your customers • A lack of funding from some & what may be considered over funding by others (i.e. Gilead) • Some pharmaceutical organizations having to ask for money back due to the virtual nature of events • Handling the pressures of COVID-19 on the patient and the Advocacy Community • The impact on the Advocacy Community’s ability to remain open and serve their patients • Telemedicine • Lack of patient resources due to telemedicine • ... and much much more So how do we get through this and provide the data our sponsors are looking for?

10. 2020/2021 Survey Changes • Remove all stack ranking • Focus on the issues that matter to the advocacy community & the patients • Still gain insights on what “good looks like,” with regards to programmatic & policy related support tactics • Dig into the changes in the market that are impacting patients considering COVID-19 • More open-ended questions for insight & less “rank each organization”

11. 2020/2021 Areas of Focus • THE IMPACT OF COVID-19 • TELEMEDICINE UTILIZATION • PATIENT ACCESS & PUBLIC POLICY • DRUG DEVELOPMENT & R&D ACTIVITIES • SOCIAL DETERMINANTS OF HEALTH • PATIENT/PROFESSIONAL GROUP KNOWLEDGE OF PBMS VS PAYERS • THE IMPACT OF NON-MEDICAL SWITCHING • PATIENT/PROFESSIONAL GROUP PERCEPTION/AWARENESS OF COPAY ACCUMULATOR PROGRAMS • FINANCIAL TOXICITY • SUPPORTING THE PATIENT CAREGIVER