1 / 53

Services & TN ’ s Families of Children with ASD

Services & TN ’ s Families of Children with ASD. Bob Hodapp, Maria Mello, Samantha Goldman & Rick Urbano. Today ’ s Talk = . Introduction & Methods (short) Results Overall By age By rural vs. non-rural By grand region of state Discussion What we found & what we recommend. Project Itself.

uyen
Download Presentation

Services & TN ’ s Families of Children with ASD

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Services & TN’s Families of Children with ASD Bob Hodapp, Maria Mello, Samantha Goldman& Rick Urbano

  2. Today’s Talk = • Introduction & Methods (short) • Results • Overall • By age • By rural vs. non-rural • By grand region of state • Discussion • What we found & what we recommend

  3. Project Itself • Tennessee’s ACT Early Team • to “…improve access to comprehensive, coordinated health care and related services” for children-youth with disorder (ASD). • Part of job to perform “resource mapping” • Decided (in 12-11) to perform web-based statewide survey

  4. Timeline of Survey • Meetings to: • Decide on performing survey (12-11 & 1-12) • Agree on survey questions (2-12) • IRB approval (late March, 2012) • Uploading survey into RedCap & Testing survey (Rick, Maria) • Translation into Spanish (Maria & Pathfinder) • Making flyers (English-Spanish--Kylie)

  5. Timeline--Recruitment • Six community conversations re: service needs promoted survey • Cory Bradfield—coordinator, & John Shouse—facilitator/MC • Maria’s e-mails-calls (5-12 to 11-12) to… • 538 agencies-organizations • East = 188; West = 137; Middle = 197 • Appearance on Nashville Spanish-language radio—July, 2012

  6. Final Flyer

  7. Participants per Week

  8. Current

  9. Current Status • N = 421 (with complete data) • 65 of state’s 95 counties • East: 23.0%; 24 of 34 counties • Middle: 62.1%; 26 of 40 counties • West: 14.9%; 15 of 21 counties

  10. Participant Characteristics • Mothers 84.5%; Fathers 9.7%; Other 4.8% • White = 83.6%; Af-Am = 8.6% (36); Hispanic = 5.9% (25) • Ed levels: • Less than HS or HS grad = 14.7% • Some college = 27.3% • BA/BS = 29.9% • Professional degree = 28.2%

  11. Results: Organization • Major Categories: • I-Overall (for entire sample) • II-Age-Groups (0-4; 5-13; 14 & up) • III-Rural vs. Non-Rural & TN Grand Division • Within Each Category • (a) Co-occurring Problems • (b) Diagnostic Issues • (c) Services received, needed, coordinated

  12. (a) Co-Occurring Conditions:% w/ Moderate-Severe Behavior Issues

  13. (a) Co-Occurring Conditions

  14. (b) Diagnostic Issues

  15. (b) Diagnosis: Type of Concern

  16. (b) Diagnosis: # of Pros Consulted

  17. (c) Frequently Received Services

  18. (c) Least Frequently Received Services

  19. (c) Recommended Services Home School

  20. (c) Services NOT Implemented School Home

  21. (c) Recommended Medical Services

  22. (c) Medical Services NOT Implemented

  23. (c) Recommended Parent Services

  24. (c) Parent Services NOT Implemented

  25. ( c) Recommended Service “Not Available in Area”

  26. (c) Recommended Service “Not offered by school”

  27. (c) Service Coordination

  28. Results by age group

  29. (a) Co-occurring Issues

  30. (b) Age of Diagnosis

  31. (c) Services Received

  32. (c) Recommended Services Home School

  33. (c) Services NOT Implemented School Home

  34. (c) Recommended Medical Services

  35. (c) Services NOT Implemented

  36. (c) Parent Services Recommended NOT Implemented

  37. Results by rural/non-rural

  38. (a) Co-occurring Issues

  39. (b) Diagnosis- Age of 1st Discussing Concern with a Professional

  40. (b) Age of Diagnosis

  41. (c) Services NOT Implemented

  42. Results by region

  43. (c) Services NOT Implemented

  44. Five Recommendations • Acknowledgment that many are possible • But five seem most justifiable from these findings

  45. Recommendation #1 • Increase Professional Training • Why? • Lag between parent concern-consultations and ultimate ASD diagnosis • Going to too many professionals before diagnosis • What exactly? • Screening (like MD-STAT), for many disciplines • Better referral information (WHO gets called?)

  46. Recommendation #2 • Increase-Target Services for Older Children • Why? • Many problems increase (mainly anxiety-depression, ADD, other MH concerns) • Many children with these problems not receiving counseling/MH care • What exactly? • Identification of MH professionals who serve (are good at serving?) children-adolescents w/ASD

  47. Recommendation #3 • Increase Specific Types of Services • Why? • Although all services should to be increased, several seemed especially problematic • What exactly? • ABA-behavioral supports (school & community) • Parent-related supports (P groups, workshops) • Specific health (DAN doctors, genetic & sleep evaluations)

  48. Recommendation #4 • Increase Attention to Rural Areas • Why? • Rural > Non-rural for • Some co-occurring conditions • Higher percentages who cannot access ABA, parent, and special medical services • What exactly? • Given relatively short distances (& good highway system), is issue more one of knowledge-referrals?

  49. Recommendation #5 • Increase Coordination of Services • Why? • For sample overall: • 90% want service coordination; 6% get it • Only 1/3 of providers even know of others; only 13-15% often talk with or plan/coordinate services • What exactly? • Need to develop mechanism to make planning-coordinating common (& compensated) part of service practice

  50. Special thank you’s to… • TN Disability Coalition & Community Partners • Cory Bradfield • Carol Westlake • John Shouse • Vanderbilt Kennedy Center • Terri Urbano • Jan Rosemergy • Lynnette Henderson • Kylie Beck • Courtney Taylor

More Related