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Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond

Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond. Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of Research Lincoln Memorial University DeBusk College of Osteopathic Medicine.

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Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond

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  1. Mandates for Health Literacy in Medicine and Education – the IOM Report and Beyond Lynn Nielsen, Ph.D. Assistant Professor of Physiology & Director of Research Lincoln Memorial University DeBusk College of Osteopathic Medicine

  2. Health literacy is a shared function of social and individual factors • Individuals’ health literacy skills and capacities are mediated by their education, culture, and language

  3. Potential Intervention Points

  4. Intervention points for improving health literacy • Health systems • Social marketing • Education systems

  5. Partnerships • Critical to improved health literacy • Repeatedly mandated • but with minimal funding • Rare

  6. Obstacles to Partnership • Lack of follow through on • Existing science education standards • Mandates • Must include recommendations for funding • Funding must be provided for mandates to be carried out • Funding of recommended programs • Lack of awareness across fields

  7. Fostering Partnerships • Partnerships wanted • Adult education programs • Adult learners • Health systems • Practitioners

  8. Engage Multiple Fields • Health care services should be developed in partnerships with the local community, organizations, and institutions

  9. Local Resources • Health care institutions • Adult education programs • Libraries • Community leaders

  10. Example Partnerships • Demonstration Projects • Develop Curricula • Train the Trainer

  11. Leadership for Community Change • Kellogg Foundation Demonstration Project • Classroom training • Mentoring • Networking • Community-based leaders • Local organizations • Multiple sites

  12. Promote cross-discipline relationships • Develop self-continuing projects • Take action on existing mandates • Lobbying for increased funding

  13. References 1Committee on Health Literacy, Board on Neuroscience and Behavioral Health. Health Literacy: A Prescription to End Confusion. L Nielsen-Bohlman, AM Panzer, DA Kindig, Eds. Washington DC: National Academies Press, 2004. http://www.iom.edu/?id=32784 4 Committee on the Future of Rural Health Care, Board on Health Care Services. Quality Through Collaboration: The Future of Rural Health Care. Washington DC: National Academies Press, 2005. http://www.iom.edu/?id=29734

  14. Further Reading • A selection of articles relevant to health systems and adult education partnerships to address health literacy

  15. Doak LG, Doak CC, Meade CD. 1996. Strategies to improve cancer education materials. Oncology Nursing Forum. 23(8): 1305–1312. • HHS (U.S. Department of Health and Human Services). 2000. Healthy People 2010: Understanding and Improving Health. Washington, DC: U.S. Department of Health and Human Services. [Online]. Available: http://www.health.gov/healthypeople [accessed: January 15, 2003]. • Jacobson E, Degener S, Purcell-Gates V. 2003. Creating Authentic Materials for the Adult Literacy Classroom: A Handbook for Practitioners. Cambridge, MA: World Education Inc. • Joint Committee on National Health Education Standards. 1995. National Health Education Standards: Achieving Health Literacy. Atlanta, GA: American Cancer Society. • Matthews TL, Sewell JC. 2002. State Official’s Guide to Health Literacy. Lexington, KY: The Council of State Governments. • Morse L. 2002. Improving Health Literacy: An Educational Response to a Public Health Problem. Presentation given at a workshop of the Institute of Medicine Committee on Health Literacy. December 11, 2002, Washington, DC • Murphy PW, Davis TC, Mayeaux EJ, Sentell T, Arnold C, Rebouche C. 1996. Teaching nutrition education in adult learning centers: Linking literacy, health care, and the community. Journal of Community Health Nursing. 13(3): 149–158. • NRC (National Research Council). 1996. National Science Education Standards. Washington, DC: National Academy Press. • Pateman B, Grunbaum JA, Kann L. 1999. Voices from the field—A qualitative analysis of classroom, school, district, and state health education policies and programs. Journal of School Health. 69(7): 258–263. • Rudd RE. 2002. A maturing partnership. Focus on Basics: Connecting Research and Practice. 5(3). • Rudd RE, Moeykens BA. 1999. Adult educators’ perceptions of health issues and topics in adult basic education. NCSALL Report #8. Cambridge, MA: National Center for the Study of Adult Learning and Literacy.

  16. Members of the IOM Committee on Health Literacy • Dr. Dyanne Affonso, Executive Administrative Specialist, Dept. of Pharmacy, University of Hawaii Hilo,60 Nowelo St., Ste 101, Hilo, HI 96720 daffonso@hawaii.edu (808) 443-5900 • Dr. Eric Chudler, Eric H. Chudler, Director of Education and Outreach, University of Washington Engineered Biomaterials (UWEB), Department of Bioengineering, BOX 355061, University of WashingtonSeattle, WA 98195-5061 http://faculty.washington.edu/chudler/ehc.html(206) 616-6899 chudler@u.washington.edu • Dr. Marilyn Gaston, Assistant Surgeon General of the United States, Retired, http://www.leadwithexperience.org/prize/finalists/gaston-porter.cfmdoctwig@aol.com • Dr. David Kindig, Committee Chair, Professor of Preventive Medicine and Director of the Wisconsin Network for Health Policy Research, Department of Preventive Medicine, 760 WARF Building, 610 N. Walnut St., Madison, Wisconsin 53705-2397 http://www.medsch.wisc.edu/adminmed/faculty/dkindig.htm dakindig@facstaff.wisc.edu (608) 263-4886 • Dr. Cathy Meade, Director, Education Program, Leader, Cancer, Culture, and Literacy Institute, Moffit Cancer Center, Univerity of South Florida, H. Lee Moffitt Cancer Center & Research Institute, 12902 Magnolia Drive, Tampa, FL 33612 cdmeade@moffitt.usf.edu(813) 745-6730 • Dr. Lynn Nielsen, Committee Director, Assistant Professor of Physiology & Director of Research, DeBusk College of Osteopathic Medicine, Lincoln Memorial University, 6965 Cumberland Gap Parkway Harrogate, Tennessee 37752 http://www.lmunet.edu/DCOM/faculty/nielsen.htm 423-869-7120 Lynn.Nielsen@lmunet.edu continued next page

  17. Members of the IOM Committee on Health Literacy, continued • Allison Panzer, Committee Staff, University of Rochester Medical Center, allison_panzer@urmc.rochester.edu • Dr. Ruth Parker, Professor of Medicine, Dept. of General Medicine, Emory School of Med http://med.emory.edu/faculty/profile_bio.cfm?id=846ruth.parker@emory.edu (404) 778-1639 • Dr. Victoria Purcall-Gates, Canada Research Chair in Early Childhood Literacy, Faculty of Education, Department of Language & Literacy, 2125 Main Mall,304 B Scarfe Hall, University of British Columbia, Vancouver, B.C., Canada V6T 1Z4 http://educ.ubc.ca/faculty/vpurcell-gates/victoria.purcell-gates@ubc.ca 604.822.0105 • Irv Rootman, Centre for Community Health Promotion Research, Box 3060 STN CSC, Victoria B.C. V8W 3R4 http://web.uvic.ca/chpc/whoweare/team.htm irootman@uvic.ca (250) 472-4102 Dr. Victoria Purcall-Gates, Canada Research Chair in Early Childhood Literacy, Faculty of Education, Department of Language & Literacy, 2125 Main Mall,304 B Scarfe Hall, University of British Columbia, Vancouver, B.C., Canada V6T 1Z4 http://educ.ubc.ca/faculty/vpurcell-gates/victoria.purcell-gates@ubc.ca 604.822.0105 • Irv Rootman, Centre for Community Health Promotion Research, Box 3060 STN CSC, Victoria B.C. V8W 3R4 http://web.uvic.ca/chpc/whoweare/team.htm irootman@uvic.ca (250) 472-4102   • Dr. Rima Rudd, Senior Lecturer on Society, Human Development, and Health, Department of Society, Human Development, and Health, Harvard. 677 Huntington Avenue, Kresge Building 7th Floor, Boston, MA 02115http://www.hsph.harvard.edu/faculty/rima-rudd/index.htmlrrudd@hsph.harvard.edu617-432-3753 • Dr. Susan Scrimshaw, President, Simmons College, 300 The Fenwaym Boston, MA 02115 http://www.simmons.edu/overview/president/index.shtml susan.scrimshaw@simmons.edu 617-521-2070 • Bill Smith, Senior Scientist and Director, Social Change Group, Academy for Educational Development, 1825 Connecticut Ave., NW, Washington, D.C. 20009-5721 http://www.aed.org/Experts/smithw.cfmbsmith@aed.org202-884-8000

  18. Members of the IOM Committee on Health Literacy, continued • Dr. Rima Rudd, Senior Lecturer on Society, Human Development, and Health, Department of Society, Human Development, and Health, Harvard. 677 Huntington Avenue, Kresge Building 7th Floor, Boston, MA 02115http://www.hsph.harvard.edu/faculty/rima-rudd/index.htmlrrudd@hsph.harvard.edu617-432-3753 • Dr. Susan Scrimshaw, President, Simmons College, 300 The Fenwaym Boston, MA 02115 http://www.simmons.edu/overview/president/index.shtml susan.scrimshaw@simmons.edu 617-521-2070 • Bill Smith, Senior Scientist and Director, Social Change Group, Academy for Educational Development, 1825 Connecticut Ave., NW, Washington, D.C. 20009-5721 http://www.aed.org/Experts/smithw.cfmbsmith@aed.org202-884-8000

  19. Contracted Contributors to the IOM Health Literacy Report • Dr. Terry Davis, Contributor, Professor of Medicine and Pediatrics , Director of Behavioral Science Section, Feist-Weiller Cancer Center, LSU Health Sciences Center-Shreveport, 1501 Kings Highway, Shreveport, Louisiana 71130-3932 http://www.fwcconline.org/db/doctorbio.aspx?doctorID=129TDavis1@lsuhsc.edu (318) 675-5813 • Dr. David Howard,  Assistant Professor, Department of Health Policy and Management, Rollins School of Public Health Room 610, Emory University, 1518 Clifton Road NE Atlanta, GA 30322http://www.sph.emory.edu/~dhhowar/david.howard@emory.edu 404-727-3907 • Dr. Dean Schillinger, University of California San Francisco, San Francisco General Hospital, 1001 Potrero Avenue, San Francisco, CA 94110, Box 1364, Bldg 10 http://dgim.ucsf.edu/sfgh/Faculty/schillinger.html(415) 206-8940 dean@itsa.ucsf.edu • Barry Weiss, Contributor, Professor , Department of Family and Community Medicine, University of Arizona College of Medicine, 1501 N. Campbell Avenue, PO Box 245017, Tucson, Arizona 85724 http://www.fcm.arizona.edu/index.cfm/1,149,320,0,html/Barry-Weiss (520) 626-4555

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