Tackling loneliness and social isolation through peer to peer support groups

1. Tackling loneliness and social isolation through peer to peer support groups Toby Williamson – Head of Development & Later Life, Mental Health Foundation

2. Loneliness in later life – some images

3. Loneliness in later life – the headlines “A million elderly hit by ‘epidemic of poverty and loneliness” – Daily Mail (2011) “MPs highlight Plight of Millions of Lonely Older People” – Campaign to End Loneliness (2012) “Loneliness of the 'silver splitters': Rise in OAP divorces leaves more elderly people facing an unhappy old age dependent on carers” – Daily Mail (2014) Loneliness twice as unhealthy as obesity for older people, study finds” – The Guardian (2014)

4. Mental Health Foundation • A UK-wide charity committed to enabling people to live mentally healthier lives • Social research and development work, public information, policy and influencing work • Life long mental health issues, problems and conditions, and issues affecting people with learning disabilities

5. Loneliness in later life – being careful with language “Being alone” “Isolation” “Loneliness” “Solitude” “Living alone” “Older people”/ “later life”

6. Loneliness in later life – some statistics • 1 million people aged 65 and over say they often or always feel lonely (9% of the population aged 65 and over) • 17% of people aged 80+ report often feeling lonely compared to an average of 9% of all people aged 52+ • 49% of people aged 65+ say that television or pets are their main form of company • Around two thirds of people with dementia report feeling lonely

7. Loneliness in later life – some risk factors Individuals • Bereavement and loss • Increased time alone • (Perceived) changes in health, mobility, etc. • Changes in care dependencies • Low income Community/society • Lack of public transport/public amenities • Fear of crime • Population turnover • Technological change

8. Loneliness in later life – some effects • Socially disengaged – therefore lack emotional support • Coping with stress becomes more difficult • Negative impact on the immune and cardiovascular systems • Greater difficulties sleeping • Makes regulating food and alcohol intake harder • Loneliness associated with a greater risk of cognitive decline, developing depression and dementia, and a significant predictive factor for suicide

9. Loneliness in later life – some solutions “Volunteering” “Befriending” “Men in sheds” “Technology” “Age friendly cities” “Silverline” “Hensioners”

10. “Hensioners”

11. Self help peer support project • Two year pilot project delivered in partnership with Housing & Care 21 • Focused on people with dementia and memory problems • Three groups set up and facilitated for 6 months in three housing with care housing schemes in London • 6-10 people in each group • Externally grant funded

12. Self help peer support project - aims • Enable participants to learn simple, practical coping strategies to deal with memory loss etc. • Help participants maintain or even reduce the level of care needs as practical coping improved • Reduce social isolation and feelings of loneliness and improve wellbeing of participants • Sustainability and integration into the housing provision

13. Self help peer support project • Focus on groups participants as active participants not passive recipients • Ownership of the group – ground rules and reason for meeting - led by the group’s agenda • Building trust and sharing • Weekly theme using activities that encourage sharing of skills, knowledge, problem solving strategies and enjoyment • But groups also reflected diversity of members

14. Self help peer support project - findings • Full outcomes and process evaluation carried • Groups participants • 21 group members participated in the evaluation • 13 women and 8 men • Mean average age was 83 (range 67-97) • 8 participants were non-UK born • An average 77% attendance rate was achieved across all three groups for the initial six months

15. Self help peer support project - findings • Positive impact on participants’: • general mental health and wellbeing • social ‘connectedness’ + reported improvements in communication abilities, memory and practical coping strategies • Some deterioration in the independent living skills of participants over time • Two out of the three groups continued on after the initial 6 months • Challenges included recruiting participants and ‘embedding’ the approach

16. Self help peer support project - findings • “Oh yeah, I get along with the group. ‘Cause it helps, you know, and you’re not lonely and you listen to them and it’s very nice. It’s nice being talked to.” • “I remember the most, the talking and the friends I’ve made. As it is going now, it’s lovely. I want that to continue, it keeps us all together” • “I’m feeling much more determined with how I want to do things. Before I went to the group I always thought I was going to have an addled brain, but it’s not like that at all. Going to the group and listening and learning, they’ve shown me how to point myself to the future.”

17. Self help peer support project • The evaluation report is available to download for free at: www.mentalhealth.org.uk/publications/dementia-self-help-report/ • The resource pack is available to download for free at: www.mentalhealth.org.uk/publications/dementia-self-help-guide/

18. References and acknowledgements • Grouchy Old Men (2010) – Mental Health Foundation • The Lonely Society (2010) - Mental Health Foundation • Self help peer support for people with dementia – a resource pack • Self help peer support for people with dementia – evaluation report (both 2014) – Mental Health Foundation • Age UK; Bristol Ageing Better Initiative; Campaign to End Loneliness; John Cacioppo – Chicago University; Professor Christina Victor – Brunel University; Dementia 2013 - The hidden voice of loneliness (2013) – Alzheimer’s Society; English Longitudinal Study of Ageing (ELSA); Men in Sheds; Silverline

19. Tackling loneliness and social isolation through peer to peer support groups twilliamson@mentalhealth.org.uk www.mentalhealth.org.uk Any questions?

20. Improving the housing and care experiences of LGBT people in later life Antony Walker, Business Research Analyst Lesbian, Gay, Bisexual, Transgender (LGBT)

21. A little about our research • Conducted 2012-13 • Secondary research exercise including analysis of our own data • Staff interviews and focus groups • Focus groups with LGBT groups in London (2), Scarborough, Hereford and Brighton Picture to go here

22. A sizeable but hidden group “When they were growing up, homosexuality was illegal. They still have got that mind-set” - Member of one of the London focus groups Picture to go here “They are too used to hiding so they are afraid to let people know they are gay” -Bisexual member of the Hereford focus group

23. Sexuality and isolation “I hate it, I hate being in the closet…I feel I can't be myself…It took me ages to come out and live my life as I wanted to, and now I feel I've gone backwards” -Member of the staff group “Ours (leaflets for the project) went out on Friday and it was war in the restaurant on Saturday…he said it should be how it used to be, burnt at the stake or locked up”. – Staff member at a court “In sheltered schemes you get things like reminiscence groups and people are invited to bring photos of their wedding or their children and that can make one feel very isolated” - Member of the London Focus Group “They say we treat everybody exactly the same…but I'm not the same” - Member of one of the London Focus Groups

24. What we are doing to make a difference… • LGBT articles in our residents magazine • Encourage and endorse informal support networks • Online staff network set up in 2012 • Mixed success, to be refreshed in 2015 • New online customer network • set up in January 2015

26. Questions… • What are your experiences? • Has anyone else put similar plans in place to tackle social isolation for particular high risk groups? • Finally…do you have any questions? • For more… • Our full research report can be found on our website at: • www.housingandcare21.co.uk or Google: Housing 21 LGBT • You can email me at: antony.walker@housingandcare21.co.uk Thank you!