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THE PHYSIOLOGICAL AND EMOTIONAL TOLL OF CAREGIVING

unpaid family caregivers will most likely continue to be the largest source of ... spiritual community. see your physician. stay in touch with friends and ...

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THE PHYSIOLOGICAL AND EMOTIONAL TOLL OF CAREGIVING

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    Slide 1:THE PHYSIOLOGICAL AND EMOTIONAL TOLL OF CAREGIVING

    Nancy Olsen Bailey, RN, MBA Brigham And Women’s Hospital, Boston, MA

    Slide 2:Definition of caregiver

    anyone who provides help to someone who is to some extent incapacitated informal caregivers (hidden patients) formal caregivers

    Slide 3:Caregiver statistics Family Caregiver Alliance

    estimated 52 million informal and family caregivers provide care to someone 20 + who is ill or disabled unpaid family caregivers will most likely continue to be the largest source of long term care in the U.S.

    The value of the services family caregivers provide for “free” is estimated to be $306 billion a year. That is almost twice as much as is actually spent on homecare and nursing home services combined. Arno, Peter S. “Economic Value of Informal Caregiving”

    Slide 5:Who care the informal caregivers?

    majority are women 35-64 years old majority are employed

    Slide 6:How does stress effect us ?

    Good Stress (fight or flight) Bad stress (chronic)

    Slide 10:Impact of Caregiving

    Physical Emotional Behavioral Financial

    Slide 11:Physical effects

    Hypertension Acid reflux Headaches Diabetes Hypercholesterolemia Memory, attention, IQ deficits

    Slide 12:Emotional effects

    anxious depressed irritable, moody frustrated, guilty angry helpless, sad, overwhelmed lower levels self esteem

    Slide 13:Tell tale signs of caregiver stress

    crying more than usual low energy level feeling like you have no time for yourself trouble sleeping, not wanting to get out of bed in the morning trouble eating, overeating seeing friends less often losing interest in your hobbies feeling angry at the one you are caring for

    Slide 14:Behavioral effects

    defer own preventative health eat more saturated fat exercise less inadequate sleep social isolation maladaptive coping (self medication/ drug/alcohol misuse)

    Slide 15:Financial effects

    reduced work hours loss of employment loss of family savings

    Slide 16:AMA caregiver self assessment Family Caregiver Alliance www.caregiver.org exercise, nutrition, sleep accept help ! this does not mean you are a failure support groups (disease/caregiver)

    Self help

    Slide 17:relaxation response complimentary therapies offered to patients : art therapy, music, yoga National Family Caregivers Association www.nfcacares.org social worker services respite care financial support

    Slide 18:spiritual community see your physician stay in touch with friends and family

    Slide 19:Offering help to caregivers

    Don’t say “Please call me if I can help” Do say “I am off tomorrow and can do your grocery shopping” etc. organize a dinner club offer rides to the hospital buy parking passes for hospital visits offer to visit with the patient so the caregiver can exercise, get a haircut, etc.

    “Take some time out to do whatever makes you feel good...If you spend an hour walking or running or doing aerobics a few times a week, you will not be wasting time on yourself. And you will make up for any “wasted” hours by being more productive and able to focus and think more clearly. In effect, by taking care of yourself, you can take better care of your patient.” Gerri Monaghan co-author: The Power of Two “When someone asks you, the patient, if there’s anything they can do to help, tell them, “You bet”. Ask them to stay with you while your advocate gets a chance to go exercise or see a movie, or go out to lunch. Gerri can demand the moon and the stars for me, but she really has trouble asking for help for herself... I felt that by doing the asking, I was able to help her.” Brian Monaghan, co-author, The Power of Two There is no more meaningful and valued work than that of caregiving for those we love. Caregivers make all the difference and most do so silently and unacknowledged.
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