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INFOMATION NEEDS and I.C.F. Italian experience

ISTAT. Washington Group on Disability Measurement 1° Meeting - 2002 February 18 - 21 Comparability of Cross-National Disability Measures. INFOMATION NEEDS and I.C.F. Italian experience. Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it. ISTAT.

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INFOMATION NEEDS and I.C.F. Italian experience

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  1. ISTAT Washington Group on Disability Measurement 1° Meeting - 2002 February 18 - 21Comparability of Cross-National Disability Measures INFOMATION NEEDS and I.C.F.Italian experience Elena De Palma depalma@istat.it Roberta Crialesi crialesi@istat.it

  2. ISTAT Social Changes and information needs • health and social reforms • cultural transformation • national Law (L. 104) • Policy and social context in Italy • Medical model versus Social model • ISTAT and data on disability • Administrative data sources • integration of indivual and social factotrs • integration of policies and inteventions • mobilizing all resources • “Health Conditions and Access to Health Services”. • “Aspects of daily life” • “Families, Social subjects and condition of childhood • re-evaluation of available information sources • integration of different data sources

  3. Project: “Information System on Disability”

  4. ISTAT I.S. on Disability:goals and users Implement a coordinated and integrated statistcal database Information tool to orient social integration policies for persons with disabilities Main data users:Policy-makers Researchers Associations Citizens

  5. ISTAT I.S. on Disability:activities Steps for implementation of a coordinated and integrated statistical database: • Analysis of policies • Set up focus group comprised of representatives from the various types of data user • Identification of principle thematic areas • Analysis of the most relevant experiences • Selection of data sources • Selection of main indicators • Planning of data interrogation system architecture

  6. ISTAT I.S. on Disability:problems Problems faced: • Lack of data sources covering all aspects • Lack of available and comparable data • Lack of an inter-institutional network

  7. ISTAT I.S. on Disability:products and intermediate tools Products: • Data ware-house • Indicators system • Metadata system • Website: www.handicapincifre.it Intermediate tools: • Meta-survey on data sources • Survey on handicap certification system • In-depth research of the needs of disabled persons and their families • Information gathering on application of the national law at regional level for the Parliamentary Annual Report

  8. Themes ISTAT I.S. on Disability:Main themes Households Social life Health and assistance Education and scholastic integration Work and employment Accidents Transport Spending on monetary benefits Recipients of monetary benefits

  9. ISTAT Environmental Factors Personal Factors General model of componentsICF 2001 Health Condition (disorder/disease) Participation Body Functions & Structures Activities

  10. ISTAT Relationship with ICF One level ICF Activities and participation • Chapter 3 Communication • Chapter 4 Mobility • Chapter 5 Self-care • Chapter 8 Major life areas: Education   Work and employment Economic life • Chapter 9 Community, social and civic life Environmental factors • Chapter 3 Support and Relationship • Chapter 5 Services, Systems and Policies I. S. on Disabilities • Difficulties with communication, mobility, self-care • Education and scholastic integration • Work and employment • Recipients of monetary benefits • Social life • Families and networks • Health and assistance • Accidents • Transport • Spending on monetary benefits • Education and scholastic integration

  11. ISTAT Euro Disability Data n.2 Project Project: “Indicators on Integration of Disabled Persons into Social Life” Istat - National Institute of Statistics- Italy

  12. ISTAT Indicators on Integration of Disabled Persons into Social Life Goals of the Project • To identify a short set of indicators useful for informing the policy-makers on the status of the integration of disabled persons • To monitor the efficacy of integration policies directed persons with disabilities • To allow policy-makers to plan new intervention strategies

  13. ISTAT Indicators on Integration of Disabled Persons into Social Life Indicators Core Indicators Precondition dimension Health promotion MOBILITY AND ACCESSIBILITY secondly Social protection Target Areas dimension EDUCATION EMPLOYMENT SOCIAL PARTICIPATION

  14. ISTAT Indicators on Integration of Disabled Persons into Social Life:main problems The project has emphsized that: • ICF is not operative everywhere from a statistical viewpoint • To evaluate the integration of disabled persons in society is necessary to utilize data from different sources • Data sources are not available for all topics in all countries • Available Data are not always comparable

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