Live well with Dementia: an achievable goal Age UK Brent Conference Carolyn Denne October 2013

1. Live well with Dementia: an achievable goal Age UK Brent Conference Carolyn Denne October 2013

2. What I will cover • SCIE, NICE and NCCSC – roles in quality improvement • Supporting people to live well with Dementia • Resources that can help

3. The ‘Mum (in-law) test’

4. Driving up quality to improve health and well-being of people living with dementia

5. What is SCIE? • Independent national charity since 2001 • Identify and spread knowledge about ‘what works’ in social care – adults, children, families in the UK • Improvement support for practice - personalised services - practitioners, managers & sector leadership • Co-production - experience and expertise of people using services at the centre of our work • How health and social care work together to enable best outcomes for people http://www.scie.org.uk/

6. What is NICE? • Non Departmental Public Body (NDPB) - national guidance and advice to improve health and social care. • Estbl.1999 - National Institute for Clinical Excellence - special health authority to reduce variation in the availability and quality of NHS treatments and care • From 2005 - public health guidance to help prevent ill health and promote healthier lifestyles. • April 2013 - Health and Social Care Act 2012 - became a NDPB and took on responsibility for developing guidance and quality standards in social care (NB name change) http://www.nice.org.uk/

7. NICE role in social care • Guidance based on best available evidence – with comprehensive set of recommendations • Quality standards based on guidance – prioritised set of statements designed to drive quality improvements across pathway of care (‘aspirational but achievable’) • Markers of high quality, cost-effective care - interfaces across NHS, Public Health, Social care • Early topics – include Quality Standard on Supporting people to live well with dementia

8. NICE Collaborating Centre for Social Care - NCCSC • Partnership, led by SCIE: • Rooted in the social care sector – specialists • Good stakeholder knowledge and networks • Reputation for working with people using services, their families, carers and networks • Dissemination and adoption (evidence into practice) • built in from start of the guidance development process • Includes Quality Standards.

9. NICE Social Care Guidance(Referred to NICE by DH) • Home care • Older people with long-term conditions • Transitions between health and social care • Transitions from children’s to adults’ services • Child neglect • (TBC)

10. Quality Standards • Dementia • Looked-after children and young people • Mental wellbeing of older people in care homes • Autism in children, young people and adults Short guidance • Managing medicines in care homes

11. Quality statements People with dementia – involving carers Can discuss concerns and options re seeking diagnosis Choice and control in decisions affecting care and support. Participate in review of needs and preferences when things change Enabled to take part in activities during their day based on choice Enabled to maintain and develop relationships Contd...

12. Quality statements (II) People with dementia – involving carers Enabled to access services that help maintain physical and mental health and wellbeing. Live in housing that meets their specific needs. Have opportunities to participate in and influence design, planning, evaluation and delivery of services. Enabled to access independent advocacy services Enabled to maintain and develop involvement in and contribution to community.

13. Dissemination and adoption support (NCCSC) • Awareness – new initiative for the social care • Practical support – evidence into practice – examples & signpost • Key audiences • public/ people affected by dementia • ‘Professionals’ • Commissioners • Providers • Work closely with them to produce resources Providers; carers, friends and advocates (Dec/Jan)

14. SCIE Resources xxxxxxxxx Dementia Gateway: advice, information and training materials Social Care TV films eLearning: The Open Dementia Programme

15. SCIE’s Dementia Gateway is: • focused on understanding the person with dementia as an individual • evidence based, reliable and practical • written in plain English. Dementia Gateway features SCIE’s Dementia Gateway is: • focused on understanding the person with dementia as an individual • evidence based, reliable and practical • comprehensive covering over 70 topics • written in Plain English

16. regularly updated and written and quality assured by experts • accessible – information presented in a range of formats including print and film, and can be found by topic or by audience (New feature) • mapped to the Qualifications Credit Framework, thereby supporting training and development. (New feature) Gateway features 2 • regularly updated and written and quality assured by experts • accessible – information is presented in a range of formats including print and film, and can be found by topic or by audience (New feature) • mapped to the Qualifications Credit Framework, thereby supporting training and development. (New feature)

17. Focus on topics that people with dementia and carers have told SCIE are important. • Redeveloped Gateway – launching soon – will cover over 70 topics/ aspects grouped under three main headings: • Understanding dementia • Living with dementia • Dementia-friendly environments Gateway features 2 • regularly updated and written and quality assured by experts • accessible – information is presented in a range of formats including print and film, and can be found by topic or by audience (New feature) • mapped to the Qualifications Credit Framework, thereby supporting training and development. (New feature)

18. Other SCIE Resources to support improvement for people living with dementia include: • Integration tool – to help assess joined – up working • Co-production • Mental Capacity • End of Life Care • Consultancy support Gateway features 2 • regularly updated and written and quality assured by experts • accessible – information is presented in a range of formats including print and film, and can be found by topic or by audience (New feature) • mapped to the Qualifications Credit Framework, thereby supporting training and development. (New feature)

19. The ‘Mum Test’ and Dementia Challenge in Brent

20. Thank you!! Carolyn.denne@scie.org.uk