1 / 26

NCHPEG & Genetics Education in the U.S.

NCHPEG & Genetics Education in the U.S. Erin K. Herrick, SCM NCHPEG project director & Preston Reynolds, MD, PhD, FACP NCHPEG BOD member. Genetics Competency. Hofman KJ et al. Acad Med 1993;68:625-32 Giardiello FM et al. NEJM 1997;336:823-27

agnes
Download Presentation

NCHPEG & Genetics Education in the U.S.

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. NCHPEG & Genetics Education in the U.S. Erin K. Herrick, SCM NCHPEG project director & Preston Reynolds, MD, PhD, FACP NCHPEG BOD member

  2. Genetics Competency • Hofman KJ et al. Acad Med 1993;68:625-32 • Giardiello FM et al. NEJM 1997;336:823-27 • Hayflick SJ et al. Genetic Med 1998;1:13-18 • Collins F. Acad Med, 1997 + NEJM, 1999

  3. Collins F. Acad Med 1997, NEJM 1999 Most Americans are confident of the ability of physicians to tell them whether they are at risk for developing an inherited disease or to interpret the results of genetic tests… Doctors and other health professionals are not yet prepared to inform patients about the appropriate application of genetic tests, or to provide basic genetic education and counseling as more genetic tests and technologies becomeavailable.

  4. Response to the Problem • National Coalition for Health Professional Education in Genetics – AMA, ANA, NHGRI • Faculty Development – HRSA, NCI, NHGRI Debate: Should generalists deliver genetics services? Who is target of genetics education?

  5. Development of first curriculum in genetics for the generalist • First initiative to incorporate genetics into practice through a train-the-trainer model

  6. GPC: Genetics through a Primary Care Lens • Expansion of Differential Diagnosis to include diseases with genetic basis • Use of family history • Importance of non-directive counseling • Recognition of ethical, social, legal and cultural issues in genetic testing

  7. Origins of NCHPEG • Mission • Home for all healthcare professionals • Tools to educate and incorporate genetics in practice

  8. Origins of NCHPEG • Structure • Executive committee to BOD • Full-time executive director and staff • Expansion of working groups

  9. NCHPEG’s Core Competencies • Knowledge • Skills • Attitudes • Testimonials • Current membership • Available in Spanish

  10. What do we think HPs need? take a 3-generation pedigree recognize patterns & red flags use available resources know when, where, and how to refer

  11. What are HPs asking for? • Tailored, case-based examples of application, adaptable fhx forms, decision trees (annual targeted ed) • Content for lectures, slides, new text chapters (searchable database; lectures) • Workshops & programs @ national meetings (staff & NCHPEG reps) • Reliable websites/links (GROW search engine) • Recommendations for CEU/CMEs (partner orgs) • Curriculum guidelines (core comps & principles)

  12. 5-yr $2.5M Genetics Ed HRSA contract allows us to: • work with professionals to determine what they need and how to deliver; • create new, discipline-specific, multimedia programs; and • centralize genetics ed resources for professionals.

  13. NCHPEG Working groups • Family history • Content and instruction • Targeted education projects • Clearinghouse of genetics education • Core competencies • Marketing • Membership & Diversity

  14. Genetic Family History in Practice

  15. Work in progress. . . • CD-Rom on Genetics and Common Disease for primary care and public health providers • Genetics, Race, and Healthcare (RWJF grant) • Targeted genetics education for SLP & Audiologists • “Genetics – Why I should care” for nurses • Genetics for PDAs

  16. http://global-design.com/clients/NchpegSite/index.html

More Related