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POST DIAGNOSTIC SUPPORT

POST DIAGNOSTIC SUPPORT. Martine L Marshallsay. POLICY FRAMEWORK. National Autism Plan for Children (NAPC) 2003 A.S.D. Strategic Action Plan for Wales 2008 N.I.C.E. Clinical Guidelines 2011. AIMS OF SESSION. Giving the diagnosis Support after diagnosis Support after non-diagnosis

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POST DIAGNOSTIC SUPPORT

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  1. POST DIAGNOSTIC SUPPORT Martine L Marshallsay

  2. POLICY FRAMEWORK • National Autism Plan for Children (NAPC) 2003 • A.S.D. Strategic Action Plan for Wales 2008 • N.I.C.E. Clinical Guidelines 2011

  3. AIMS OF SESSION • Giving the diagnosis • Support after diagnosis • Support after non-diagnosis • Diagnosis in Teenage Years

  4. DIAGNOSIS • “When parents finally realise their child has autism, when they realise that in a sense they have ‘lost’ the child they thought they were going to have, they often feel overwhelmed by a sense of despair and depression, coupled with anxiety about their child’s future” (Baron-Cohen, Bolton. 1994)

  5. GIVING THE DIAGNOSIS • Who is giving the diagnosis? • Who is receiving the diagnosis? • Consider timing of appointment • Establish knowledge and awareness of family

  6. GIVING THE DIAGNOSIS • Discuss the results of assessments • Discuss the rationale for diagnosis or non-diagnosis • Allow time for questions and discussion • Give initial written information

  7. PARENTS’ PERSPECTIVE • Welcome to Holland by Emily Perl Kingsley

  8. POST DIAGNOSTIC SUPPORT • Planned further opportunity to discuss diagnosis • Contact telephone numbers of appropriate professionals • Information about process and services • Information about support groups and organisations

  9. DIAGNOSIS IN TEENAGE YEARS • Who is the best person to give the diagnosis? • What post diagnostic support is available? • A difficult time!

  10. DAVID • Diagnosis confirmed at 15 • David received diagnosis at 17 • Managing the situation • Support for the family

  11. HARRY • Diagnosis at 15 • Positive impact on school life for Harry • Future opportunities • Knowledge = Relief

  12. PARENTS’ PERSPECTIVE Celebrating Holland – I’m home! By Cathy Anthony

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