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This project aims to evaluate and improve community-based treatment alternatives for children, addressing barriers and limitations, enhancing services, and increasing funding opportunities. Stakeholders identified challenges and provided recommendations to the Illinois DHS and legislature.
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Community-based Treatment Alternatives for Children Amy Starin & Ray Connor 9/23/04
Goals • Consumer led evaluation and assessment process • Assess barriers and limitations to the community-based ICG alternative • Develop and implement recommendations for improved services
Background • $100,000 federal grant from Dept. of Health & Human Services, Center for Medicare & Medicaid Services • Ray Connor, Parent & Amy Starin, DMH co-principal investigators • Governance Council – the principal investigators, 4 other ICG parents, 3 SASS reps, an IFF rep and the ICG director
Background (continued) • Illinois Federation of Families (IFF) fiscal agent • Approximate 18 month duration
Outcomes • Improved services allow more ICG families to use the community-based option • Improved family satisfaction based on surveys • More funding available through expanded use of Medicaid
Accomplishments • Staffed Governance Council with over 50% consumers. • Created effective project team verified by the Wilder Collaboration Factors Inventory • Obtained opinions and recommendations from 58 ICG family members • Obtained opinions and recommendations from 15 SASS agencies statewide
Accomplishments (continued) • Obtained opinions and recommendations from 6 ICG teens • Analyzed stakeholder recommendations • Developed service recommendations linked to stakeholder input
Recommendations • Service Improvements • Expand SASS Role in Support of ICG Children and Families • Expand Availability and Improve Therapeutic Stabilization (Respite) Services • Improve Availability of Therapeutic Recreation
Recommendations • Additional Funding through Increased Medicaid Eligibility and 1915C Waiver • Administrative • Expand ICG Office Support for ICG Families • Modify ICG Rule to Allow Additional Community-Based Services
Remaining Steps • Develop implementation plan • Produce plan for Medicaid waiver • Evaluate best practices through a focus group of successful parents • Procure new services
Summary • Stakeholder identification of barriers and issues with community-based ICG services • Consumer led identification of new and changed services • Recommendations to Illinois DHS and legislature • Implement new services