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Belgrade Advocacy Workshop NMO Priorities 14-15 September 2012 Belgrade Art Hotel (BAH)

Belgrade Advocacy Workshop NMO Priorities 14-15 September 2012 Belgrade Art Hotel (BAH) Belgrade, Serbia. NMO Priorities – Group 1. Awareness Few doctors know about PIDs Public awareness is poor Impact on Diagnosis Rarity of PID Little interest among immunologists

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Belgrade Advocacy Workshop NMO Priorities 14-15 September 2012 Belgrade Art Hotel (BAH)

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  1. Belgrade Advocacy Workshop NMO Priorities 14-15 September 2012 Belgrade Art Hotel (BAH) Belgrade, Serbia

  2. NMO Priorities – Group 1 • Awareness • Few doctors know about PIDs • Public awareness is poor • Impact on Diagnosis • Rarity of PID • Little interest among immunologists • Lack of specialist centres • Adult Care • Low treatment regimen

  3. NMO Priorities – Group 2 • Lack of diagnosis • Lack of awareness • Adult care – only IV • Lack of funding/leading to treatment interruption • No SCIG treatment available in some countries • Inappropriate legislation / reimbursement policies

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