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Paediatric Insulin Pump Project Improving Patient Engagement. Insulin pumps. Small pager like device administering continuous flow of insulin, replaces need for daily injections. How do pumps improve patient experience?. Reduce the risk and severity of hypoglycaemia
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Paediatric Insulin Pump Project Improving Patient Engagement
Insulin pumps Small pager like device administering continuous flow of insulin, replaces need for daily injections
How do pumps improve patient experience? Reduce the risk and severity of hypoglycaemia Reduce the likelihood of admission for DKA Improve overall quality of life
but…. transition onto pumps is a difficult time for families
What’s happening in… 20% paediatric caseload on pumps Number increasing as NICE criteria met Clinical support provided - but more required Award for project to enhance patient engagement
The Project – Phase 1 • Developing an insulin pump policy: • Referral pathway • Education & support • Complications • Maintenance
The Project – Phase 2 • Concern around conflicting advice • MDT developed food diary & reference tables • Standardised information across departments
The Project – Phase 3 • Launch event: • Enthusiasm for support group • Activities • Positive feedback • Some verygood art work!
Learning & Challenges Learning: Don’t underestimate the children! Tapping into other services: Arts for Health, PPE, NIII. Allow a project to grow Challenges: Capturing improvement Maintaining momentum Evening commitment
Where next for the project? Raise profile Family education sessions Fund raising opportunities Maintain information feedback loop Group to become self supporting
Thank you for listening, any questions?