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Prostate Cancer Start the Conversation Us TOO International

Prostate Cancer Start the Conversation Us TOO International Prostate Cancer Education & Support Network. Value of Us TOO to Prostate Cancer Community.

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Prostate Cancer Start the Conversation Us TOO International

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  1. Prostate Cancer Start the Conversation Us TOO International Prostate Cancer Education & Support Network

  2. Value of Us TOO to Prostate Cancer Community Us TOO educational resources and support services help men and their spouses/partners and families make informed decisions about prostate cancer detection, treatment options and related side effects. • Us TOO website (www.ustoo.org) • Inspire online communities • Toll-free Us TOO Prostate Cancer HelpLine (1-800-808-7866); which includes matching callers with similar survivors or caregivers for peer-to-peer conversations • Chapter/support group services & telephone support group • Monthly Hot SHEET newsletter • Frequent ‘News You Can Use’ updates and articles • Educational content – digital and printed • Educationalevents and presentations • Awareness/fundraising through special events like the Rochester SEA Blue Ribbon Walk, SEA Blue Chicago Walk & Run walk/run and numerous local events across the country • Advocacy initiatives to impact legislation for prostate cancer research funding

  3. What’s a prostate and what does it do? • Gland that’s about the size and shape of a walnut • Located below the bladder and in front of the rectum • Produces a fluid that mixes with sperm

  4. Prostate Cancer Stats • Prostate cancer is the most common cancer among men • It’s the second most common cause of death from cancer in men (following lung cancer) • Nearly 30,000 men die every year from prostate cancer • More than 200,000 men are diagnosed every year • More than 2 million men in the U.S. are living with a prostate cancer diagnosis • That number is estimated to climb to 4 million by 2024

  5. High Risk Factors • Age: 97% are men age 50+ and 60% are men 65+ • Race - African American men: • Have the highest incidence of prostate cancer • Are 60 % more likely to develop the disease compared to Caucasian men • And more than twice as likely to die from it • Genetics: Men with a family history of prostate cancer are at higher risk for developing prostate cancer • Veterans: Vietnam & Korean War veterans exposed to Agent Orange (or men exposed to excessive chemicals)

  6. Prostate Cancer Diagnosis • Screening for prostate cancer includes: • PSA (prostate specific antigen) blood test • DRE (digital rectal exam) • Biopsy for diagnosis • Confusion over inconsistent messages about the value of PSA testing • USPSTF • Current CMS “Non-Recommended PSA-Based Screening” • Increased diagnosis of advanced disease

  7. Gleason Grades Cell formations are graded on a scale of 3 to 5: Grade 5: cancer cells appear as sheets; high-grade cancer/aggressive Grade 4: cancer cells appear poorly differentiated (irregular shapes and combinations) Grade 3: cancer cells appear moderately differentiated

  8. New 5 Grade Group System • Grade Group 1 (Gleason score ≤ 6) Only individual discrete well-formed glands • Grade Group 2 (Gleason score 3+4=7) Predominantly well-formed with lesser component of poorly-formed glands • Grade Group 3 (Gleason score 4+3=7) Predominantly poorly-formed glands with lesser component of well-formed glands • Grade Group 4 (Gleason score 8) Only poorly-formed/fused glands • Grade Group 5 (Gleason score 9 to 10) Lacks gland formation

  9. Prostate Cancer Diagnosis • Rather than any “quick fix” for prostate cancer, there are many treatment options and related side effects that each patient needs to evaluate • Avoid being over-treated or under-treated

  10. Prostate Cancer Treatment Options • Active Surveillance • Surgery • Radiation (external or brachytherapy) • Cryotherapy • Hormone Therapy • Chemotherapy • Biotherapy

  11. Managing Side Effects • Initial Treatment • Surgery • Radiation • Common Side Effects • Erectile Dysfunction • Incontinence

  12. Intimacy Issues • Erectile Dysfunction • Pills • Injections • Pumps • Implants • Incontinence • Pads • Slings • Artificial Sphincter

  13. Prostate Cancer Recap • Lack of prostate cancer awareness & education about the disease/detection • No symptoms until disease is advanced • Confusion over PSA testing per USPSTF guidelines • Once diagnosed, there’s no single “best” treatment • Every treatment has side effects • Misnomer that men don’t die from prostate cancer • If detected early, it can be cured… There IS a cure for cancer – under the right circumstances!

  14. Find Prostate Cancer Educational Resources & Support Services at www.UsTOO.org Thank You!

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