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R. Laumond, J. Baron Lysio, M-L Doizé

Education of patients with primary hypogammaglobulinemia for S/C Ig self-administration The Saint-Louis Hospital (Paris) Experience. R. Laumond, J. Baron Lysio, M-L Doizé. Aims of the approach. Allowing for autonomy of patients at home Reducing the costs for the health system

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R. Laumond, J. Baron Lysio, M-L Doizé

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  1. Education of patients with primary hypogammaglobulinemia for S/C Ig self-administrationThe Saint-Louis Hospital (Paris) Experience R. Laumond, J. Baron Lysio, M-L Doizé

  2. Aims of the approach • Allowing for autonomy of patients at home • Reducing the costs for the health system • Modifying the use of out-patient hospital

  3. The educational booklet

  4. Week 1, 2, … Evaluation scale Hygiene and installation Hand washing, Asepsis Waste Peremption of products … Technical care Date, and validation: -Demonstration -Made « alone or with » -Acquired

  5. Inclusion • S/C administration of Ig is a medical decision • Eligibility Criteria : • Voluntary contribution • Cognitive capacity • Subjective assessment of skilfulness • Rule approval

  6. Training period • 3 steps for each patient • Demonstration (showing & handling by a nurse) • Made « with » (handling with a nurse) • Made « alone » (validated by a nurse) • The step made « alone » can be carried on for several weeks until autonomy is reached

  7. Practical course

  8. Hand washing • Work surface organization • Syringe manipulation

  9. Programming and connecting the ambulatory infusion pump • Draining the tubulure after adjusting it on the syringe

  10. Made alone Decontamination of the cutaneous surface • Installation and occupation of the patient during infusion as wished • Subcutaneous injection

  11. Following at home • Control session planned 3 months later in out-patient hospitalisation • Thereafter, hospitalisation or consultation every 6 months • Call center for questions or emergency

  12. QuantitativeResults • 48/58 substituted patients included • 159 out-patient sessions (Median = 3 per patient) • 1 failure (patient decision) • Few side effects (only local reactions) • Treatment could be resumed in all patients

  13. Qualitative results • Most patients (95%) were satisfied with Ig s/c administration : • More comfortable and painless than Ig IV • Less time consuming • Satisfied with the process

  14. Conclusion

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