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At the heart of the dialogue Improving the patient - professional interaction in decision making Janneke Elberse Msc, Ma Janneke.elberse@falw.vu.nl Athena Institute Vrije Universiteit Amsterdam. Introduction. Current situation in the Netherlands Bottom up Individual projects
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At the heart of the dialogue Improving the patient - professional interaction in decision making Janneke Elberse Msc, Ma Janneke.elberse@falw.vu.nl Athena Institute Vrije Universiteit Amsterdam
Introduction • Current situation in the Netherlands • Bottom up • Individual projects • Slowly more involvement government
Patient participation project • Different initiatives have taken place • Diabetes Foundation • Burn Foundation • Asthma Foundation • Identify and prioritize research topics • Partnership is created between different stakeholders • Special attention for care user group • Dialogue meeting
Project Heart Foundation • Partnership • Shared research agenda • Short time span
Dialogue meeting Reflection presentation by PO Plenary feedback Work session Reflection presentation by expert Prioritizing and mutual understanding Dialogue meeting Presentation Care users’ perspectives Work session Problem→ Research topic Presentation experts’ perspectives Dialogue research topic list
Project Heart Foundation Dialogue meeting • Asymmetrical relation between care users and researchers • Inclusion strategies applied
Project Heart Foundation Outcomes • Clear research topics • Participants very enthusiastic • Mutual respect created but • Researcher based research topics • Inclusion /exclusion care users’ perspectives • Behaviour • Verbal interaction
Identified obstacles • Asymmetrical relation between stakeholder groups leads to exclusion • Lack of sense of urgency • Care users not empowered enough to speak up
Recommendations • How to improve the dialogue between care users and researchers? • Decrease asymmetry • Increase visibility • Empower care users • Select care users/ researchers • Increase coherency
Conclusion Dialogue was a first step in the right direction! but Improvement is needed!
Contact Janneke.elberse@falw.vu.nl