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Specialist Palliative care for urology patients Lloyd Allen Macmillan Palliative Care Clinical Nurse Specialist. Palliative care in urology patients. 16,000 people die each year from urological cancers Majority of those die in hospital Emergency admissions are more common than planned
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Specialist Palliative care for urology patients Lloyd Allen Macmillan Palliative Care Clinical Nurse Specialist
Palliative care in urology patients • 16,000 people die each year from urological cancers • Majority of those die in hospital • Emergency admissions are more common than planned • End-of-life care can be complex due to variations in prognosis, presentation and complicated symptom management • Collaborative approach is essential between primary and secondary care. EOLC 2012 NT
Symptom Control • Haematuria – Radiotherapy (RT), Embolisation, Irrigation • Bone Pain – WHO analgesic ladder, Bisphosphonates, RT • Hypercalcaemia – corrected serum calcium >2.6mmol/l – IV Hydration, Bisphosphonates. • Spinal Cord Compression – MRI, Steroids, RT • Bladder Spasm – Oxybutynin
Specialist Palliative careSupporting general practise • Complex symptom control – ICP dying • Advanced care planning – PPC, Gold Standards Register • DNACPR Discussions • Collaborative working
Providers of Specialist Palliative Care Specialist Palliative Care Team – Integrated Hospital and Community service including Consultant (WPH & Thames Hospicecare) & Nurse Consultant (WPH) Community Nurse Specialists (CNS) Pharmacist Social Worker Clinical Psychologist Occupational Therapist Thames Hospicecare & Thames Hospicecare Ascot/ Community Hub GPSI EOLC Sue Ryder Palliative Care Home (Nettlebed) Duchess of Kent House (Reading) Marie Curie Service
Referral criteria to Specialist Palliative Care Central point of referral Fax: 01753 636139 Mon-Friday 0830-1630 01753 860441 Ext 6137 Weekend & Bank Holidays: 0830-1630 01189 365390 One referral form to access all services, ensures co-ordinated MDT approach Criteria for referral for specialist input: Complex Symptoms Psychological/ social distress Complex communication difficulties with families Expert knowledge about disease progression and future planning Remember not everyone who is dying needs specialist input!