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Jai K Das

CAPACITY BUILDING FOR RESEARCH IN RESOURCE-LIMITED SETTINGS: THE MOTHER-CHILD LINK FOR SHARING KNOWLEDGE, SKILLS AND TOOLS. Jai K Das. Maternal Mortality-287 000 maternal deaths in 2010. Global Under-Five Mortality – 6.9 million children died in 2011. Maternal health needs more research.

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Jai K Das

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  1. CAPACITY BUILDING FOR RESEARCH IN RESOURCE-LIMITED SETTINGS:THE MOTHER-CHILD LINK FOR SHARING KNOWLEDGE, SKILLS AND TOOLS Jai K Das

  2. Maternal Mortality-287 000 maternal deaths in 2010

  3. Global Under-Five Mortality – 6.9 million children died in 2011

  4. Maternal health needs more research • All types of research is needed to improve outcomes in maternal and neonatal health • Developing country populations are under-represented in medical research, where impact would be greatest

  5. Contributions Sumathipala A, Siribaddana S, Patel V. Under-representation of developing countries in the research literature: ethical issues arising from a survey of five leading medical journals. BMC Medical Ethics. 2004;5(1):5. Keiser J, Utzinger Jr, Tanner M, Singer BH. Representation of authors and editors from countries with different human development indexes in the leading literature on tropical medicine: survey of current evidence. BMJ: British Medical Journal. 2004;328(7450):1229.

  6. Too little research because there are low levels of access to tools, support, training and knowledge • This could be addressed by clever sharing and active collaboration

  7. Bridging Gaps- Global Health Network

  8. The GlobalHealthNetwork.org supporting research through sharing methods and knowledge • The Global Health Network is transforming research by sharing methods and knowledge • It is a collection of 20 connected research communities – like an online science park • Over 140,000 visits, from 172 countries (including most low- and middle-income countries) • Mother Child link is a member • Applications to support research: such as e-learning and SiteFinder

  9. Goals & Vision • STANDARDISATION • DISSEMINATION OF KNOWLEDGE • PROVIDE ACCESS • BETTER RESEARCH PRACTICES • ACCESS TO KNOWLEDGE & INFORMATION • ENABLE DATA SHARING • PEER SUPPORT & NETWORKING

  10. LATEST NEWS • RESOURCES • COMMUNITY • Community Activity • Groups • Workspace • Bookmarks • Blogs • LINK REGISTRY • SITE FINDER

  11. Categorized Resources • Browse by Target Population • Newborn and Infants • Child Health • Adolescent Health • Maternal/Fetal health during pregnancy • Labour and Delivery Care • Postnatal Care • Post Menoposal Care • Extended Family • Browse by Resource Type • Trial Design • Guidelines • Sample forms & templates • Clinical Trial Laboratories • Data Management and Statistics • Checklists • Registry of Studies • Health Inequality • Evidence Based Systematic Reviews • Latest Publications • Reports • Study Protocols

  12. Workspace

  13. Bookmarks

  14. Blogs

  15. Members

  16. Discussion

  17. The Link Registry is a global register of specimens that others can access for their own research purposes No collection of samples is too small Please list you bio-specimens here so that further knowledge can be gained from them

  18. Searchable database of pregnancy and birth cohort studies from around the world • GOAL: • promote collaboration by sharing information on participant population, bio-specimens and data • For future studies, only brief information is collected as this is not a clinical trials registration site

  19. You can also search for a study which is seeking sites to work with. Those seeking sites will list the important details of their study and you can contact them via the website. 28 28

  20. Site Finder: • It is free for both sites and collaborators to join SiteFinder • Registering takes only one or two minutes IMPORTANTLY: • Improves equity of access to research in developing countries • Brings together funders and new research sites.

  21. Mother Child Link could increase research in resource limited setting because… • It is aneutral, democraticandtrustedspace ….so people will SHARE knowledge and methods Harnessing digital technology that is being exploited • By researchers for researchers • Creates a community of practice in increase equity in access to research

  22. Acknowledgements: Funding:Zulfi BhuttaTrudie LangJeremy FarrarKevin MarshRosanna PeelingTamzin FurtadoFrancois van LoggerenbergLiam BoggsNicola McHughSam FranzenClare Rowsome Please visit: www.motherchildlink.org

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