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R Maximiliano Gómez SLaai Scientific Secretary Head, Allergy & Asthma Unit

SLAAI Symposium : immunodermatology in Latin America . 10.06.2014 17:30-19:00 Latin American Registry of Chronic Spontaneous Urticaria. R Maximiliano Gómez SLaai Scientific Secretary Head, Allergy & Asthma Unit Hospital San Bernardo. Salta, Argentina.

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R Maximiliano Gómez SLaai Scientific Secretary Head, Allergy & Asthma Unit

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  1. SLAAI Symposium: immunodermatology in LatinAmerica. 10.06.2014 17:30-19:00Latin American Registryof ChronicSpontaneous Urticaria R Maximiliano Gómez SLaaiScientificSecretary Head, Allergy & AsthmaUnit Hospital San Bernardo. Salta, Argentina

  2. CSU: a majorhealthproblem? Considered a frequent disease, its prevalence has been reported from less than 1% to over 10%, and it is estimated that 20% of the population will suffer an urticaria episode sometime in their life. In children, the prevalence was reported to be around 5%. • Zuberbier T, Asero R, Bindslev-Jensen C, Canonica GW, Church MK, Gimenez-Arnau A, Grattan CEH, Kapp A, Merk HF, Rogala B, Saini S, Sanchez-Borges M, Schmid-Grendelmeier P, Schunemann H, Staubach P, Vena GA, Wedi B, Maurer M. EAACI/GA2LEN/EDF/WAO guideline: definition, classification and diagnosis of urticaria. Allergy 2009; 64: 1417–1426. • Sánchez Borges M, Asero R, Anzotegui I, Baiardini I, Bernstein JA et al. Diagnosis and treatment of Urticaria and Angioedema: A WorldwidePerspective. WAO Journal 2012; 5: 125–147. • Pite H, Wedi B, Borrego LM, Kapp A, Raap U. Management of Childhood Urticaria: Current Knowledge and Practical Recommendations. Acta DermVenereol 2013; 93: 500–508.

  3. Why a CSU Registry? • To date, little work has been done to determine how a chronic disease registry could improve its management in practice. • Computerized registries could offer the possibility to identify both common characteristics but also differences on the magnitude of the illness and its natural history, severity and quality of life involvement, and efficacy of recommended treatment with its undesirable side effects.

  4. CSU firstregistry

  5. CSU Registry – www.slaai.org

  6. CSU Registry – www.slaai.org

  7. CSU Registry – www.slaai.org

  8. CSU Registry – www.slaai.org

  9. CSU Registry – www.slaai.org

  10. CSU Registry – www.slaai.org

  11. CSU Registry – www.slaai.org

  12. SLaai CSU Registry

  13. Demographics (n: 91)

  14. Causal agentsidentified and response to antiH1

  15. Number of Wheals, lasting and size

  16. Number of Wheals, lasting and size

  17. Number of Wheals, lasting and size

  18. Itching and Angioedema

  19. CU-Q2oL Itching

  20. CU-Q2oL Wheals

  21. CU-Q2oL: Lips edema and Social Relationships

  22. CU-Q2oL: Sleeping and Feeding

  23. CU-Q2oL: Anxious / Ashamed

  24. CU-Q2oL: Secondaryeffects of Tx

  25. FirstOptionTreatmentfor CSU

  26. SecondOptionTreatmentfor CSU

  27. Prof. Paolo TassinariDatabase n: 175

  28. Prof. Paolo TassinariDatabase n: 175Wheals

  29. Prof. Paolo TassinariDatabase n: 175Whealslastingfor…

  30. Prof. Paolo TassinariDatabase n: 175 Size of Wheals

  31. www.slaai.org Thankyou! Gracias! Obrigado! Tak!

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