Inclusion Ireland AGM & ANNUAL CONFERENCE 2008

1. Inclusion Ireland AGM & ANNUAL CONFERENCE 2008 From Service User to Citizen Personalised Budgets for People with Intellectual Disability How people can have control over their Money? Karina Wallis SCJMS

2. How can people have control over their money? • National Policy • Enhancing the partnership Incorporating widening the partnership DOH&C 1999 • The role of HB/HSE • Co – coordinating /consultative committees • Service Bids • Regional Service Plans • Allocation of Funding

3. How can people have control over their money? • Role of Service Provider • Identification of the service requirements • Identification of service user needs • Service bids • Advocacy

4. How can people have control over their money? • Current Practice • Funding allocated to service providers • Spending of Funding received • Service Delivery • Monitoring • Value for money • Who has control?

5. Current Practice Exclusion Minimum consultation Prescribed choice Group based Segregation based Paternalism Inaccessible Enhancing Partnership: Right to quality services that respect their dignity in a least restrictive environment aiming for greatest possible inclusion Equalisation of opportunity Equity, quality of service Accountability Health & Social Gain How can people get their money?Values/Principles

6. How can people get control of their money? • Policy Direction • 11 years since the strategy for equality • 11 years since such wide consultation with people with disability on all service levels has occurred • Has equality been achieved? • Do the present structures for identifying and allocating funding recognise the service user as an equal partner? • Are the present structures for identifying and allocating funding transparent and fair?

7. How can people get their money? • The Future • Will this model serve us into the future? • Will this approach ensure that the needs of the service user informs decision making? • Will consultation with the service user/family/advocate be core to the process of planning? • Will assessment of need direct allocation and spending of funding resources?

8. How can people get their money? • Best Practice/Policy that needs consideration: • Assessment of need in context of living a meaningful and fulfilled life • In depth consultation with the service user/family/advocate • Person Centred Services • Informed choice • Shared autonomy/decision making • Respect • Innovation • Leadership • Monitoring • Accountability and personal responsibility • Levelling playing pitch • Equal Citizen

9. Now you have your money – what next? • Consider type of service provision that will give you maximum control over your money: • Individual Service Design – Best Practice Model • Designed from scratch • Person Centred • Assessment of need in the context of leading a meaningful and fulfilled life • Informed choice & decision making

10. Now you have your money – what next? • Consider type of service provision that will give you maximum control over your money: • Presumes competence • Respect & dignity • Natural networks of support • Individualised safeguards • Service is uniquely attuned to the person • Flexible & Responsive • Move from Service user to citizen

11. Now you have your money what next? Individual Service Design • Vision • Assumptions • Planning • Design • Implementation & Review • Control of your money • Is this possible?

12. Now you have your money what next? • Yes! • Change in current structures & supports • Partnership • Flexibility

13. Now you have your money what next? • New structures & Supports: • Funding • Level of decision making • Level of Authority

14. Now you have your money what next? • New Structures: • Governance • Definition Of Delegated Program Governance For Consumers & Families (& Allies) Delegated program governance constitutes the assignment of specific oversight authority over service design and implementation to service users and families, either individually or collectively or both, and may include the delegated conditional power to design and guide service development (Kendrick)

15. Now you have your money what next? • New Structures: • Governance • Definition Of The Self-Management Of Service By Service Users, Families (And Allies) - The self-management of services involves a direct operational management/administrative role by service users and families (and allies). This role may be in regards to some or all aspects of service and may be shared in any combination of others including staff. (Kendrick)

16. So now you have your money what next? • Some international Examples: • Consumer & Family Support Network • Consumer & Family Governance Hosting Arrangement • Purchase Service from service provider

17. So now I have the money what next? • Some Irish examples • Microboard • Hosted model • I.S.D.

18. So now you have your money what next? • Pioneering road to have control of my money requires: • Vision • Leadership • Courage • Partnership • Information • Creativity

19. How can people have control over their money ? • Pioneering road to have control of my money requires: • Support • Sharing • Advocacy • Empowerment • Responsibility • Accountability • Flexibility • Mutuality • Openness • Equal Citizen