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Producing a patient accessible stroke audit report for stroke survivors and carers

Producing a patient accessible stroke audit report for stroke survivors and carers. Background:. The RCP Stroke Programme has run the National Stroke Audit since 1998 Clinical and organisational components Continuous and snapshot audits

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Producing a patient accessible stroke audit report for stroke survivors and carers

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  1. Producing a patient accessible stroke audit report for stroke survivors and carers Sara Kavanagh SSNAP Project Manager

  2. Background: • The RCP Stroke Programme has run the National Stroke Audit since 1998 • Clinical and organisational components • Continuous and snapshot audits • Reports with named hospital results are produced for hospitals, national health departments, regional networks and the general public. • Need for a patient friendly report • to make complex, clinically-focused audit results more accessible to stroke survivors and carers • raise awareness of the quality of stroke care and services in England, Wales and Northern Ireland. • Challenge • Stroke patients often have communication and cognitive impairments

  3. Patient Consultation • Patient involvement key part of RCP Stroke Programme • Patient reps in Intercollegiate Stroke Working Party • Strong links with patient groups including stroke survivors with aphasia • Patient consultation informed decision making about • which aspects of stroke care to include in the report, • optimal ways of presenting complex national and regional data, • report structure and layout • Colour and font • Interpretation guidance

  4. Features of Easy Access Version Report • large text and spacing • bolding key words, • substituting complex clinical terms into lay versions e.g. thrombolysis = clot busting drug; • revising report structure to ensure it follows the stroke pathway; • symbols and icons, • geographical colour coded maps instead of data tables; • simplified charts and graphs, • regionalising reports by geographical areas.

  5. Dissemination • National and regional stroke audit results are made accessible electronically and in hard copy every three months via • the patient-specific RCP webpage • (www.rcplondon.ac.uk/stroke/patients). • the web-based audit tool, • national stroke conferences, • patient groups • stroke clubs • Stroke Association • Feedback indicates the usefulness of these reports for stroke survivors and carers, clinical teams, chief executives and members of parliament in instigating improvements in stroke care. • Conclusion • Stroke survivors have a powerful voice and require timely, accessible information about the extent to which stroke services meet required standards. • ‘Easy Access Version’ is an effective means to increase knowledge and drive change • .

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