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The Haven

The Haven. Innovative Service User Led Research. Reasons for the Research. Growing number of disaffected clients a Personality Disorder diagnosis Debbie Tallis - Guardian Article - Feb. 1997 Dr. Ooi - Guardian Article - July 1997 Lesley Allen ’ s letter

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The Haven

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  1. The Haven Innovative Service User Led Research

  2. Reasons for the Research • Growing number of disaffected clients a Personality Disorder diagnosis • Debbie Tallis - Guardian Article - Feb. 1997 • Dr. Ooi - Guardian Article - July 1997 • Lesley Allen’s letter • Views of a major stakeholder not included

  3. The Method • Emancipatory (Freire 1970) • Narrative (Brown & Harris 1989) • Qualitative • Quantitative

  4. Profile • 20 men and 30 women • Age range 18 to 74 years • 86% between 25 and 54 years • 88% on long- term benefits • 66% living alone • 86% single/divorced/separated

  5. Other Psychiatric Diagnoses

  6. Percentage Analysis of Abuse TOTAL ABUSE88% CHILDHOOD ABUSE80%

  7. Personality Disorder Diagnoses Total Female Male Borderline Personality Disorder 29 23 6 Dissocial Personality Disorder 14 3 11 Unspecified Personality Disorder 7 4 3

  8. Analysis by Gender

  9. Service User Views We need more communication – no-one talks to you. The response is too slow. We don’t want to be told we’re not ill. We need acceptance and staff who understand. We need a relaxed atmosphere where we are respecting one another and we have peer support. The day hospital isn’t always the right place for us, and nor is the acute ward. Some of us need substance abuse help and they don’t understand it here.

  10. Service User Views “We need help in a crisis.” “We need a Crisis House and crisis support.” “We need help to prevent suicide attempts.” “We can feel very unsupported and need help earlier.” “We need mentoring/buddying: A befriending service One to ones Groups can be too deep for us” “We need groups when we are ready: Talking groups Writing groups Craft groups Some service user led groups”

  11. Service User Views “We need education: Positive thinking Coping strategies Anger management” “We need practical help: Advocacy Benefits Housing Child protection issues Legal/Criminal justice support” “We like the idea of alternative therapies: Massage Acupuncture Reflexology”

  12. Service User Views “Don’t forget gay and lesbian support” “We need the right kind of therapies to be available: CBT CAT DBT Counselling and psychotherapy” “We need all services to be working together: Medication if we need it CPA A strong link to statutory services”

  13. Service User Views “We need a safe base where we are understood and where we can help each other, where we can get help in a crisis 24/7, and where we can get and give ongoing support.”

  14. Colchester MIND; North Essex Mental Health Partnership NHS Trust (NEMHPT); Local Service Users of the North Essex Personality Disorder Support Group; CHUMS - self advocacy group; NEST - service user empowerment network; Phoenix Group Homes; Uttlesford PCT Lead Commissioners for Mental Health; Colchester & Tendring PCT's, & Witham, Braintree & Halstead Care Trust; Colchester Night Shelter; The A&E Department - Colchester General Hospital; Colchester Borough Council; Essex Police. A Multi-Agency Group

  15. The Haven

  16. Catchment Area Geographical Area The Haven Project is located in the Colchester, Essex area and has a geographical catchment of Tendring and Colchester PCT areas, plus the north-eastern part of the Witham, Braintree & Halstead PCT area (20 mile radius). This area has a population of approximately 334,000.

  17. Tier1. Support Advocacy and mediation practical help with benefits, housing, relationships Companionship Friendship Groups Pampering sessions Health and Fitness and Nutrition Groups Activity groups such as Arts and Crafts and Gardening Complementary therapies such as reflexology and head massage in a non-judgmental but safe environment. Tier 2. Life Skills training focusing on dailyliving Creative Writing Group Support Group Chaplaincy Group Formal Counselling Dialectical Behaviour Therapy Group Study and Work Support Day Services - A Tiered Approach

  18. Crisis Services - A 24 Hour Response 1. A 24 hour crisis phone line and mobile to text in times of crisis. 2. A non-residential Safe Centre environment providing daytime and night crisis support for up to six people at any time. 3. A short stay residential facility provides a calm, quiet location where people benefit from time away from their usual environment for up to four people.

  19. For Who? • The capacity of the day service is 25 per day. • Capacity of the Crisis Centre is up to 6 people at any one time at the Safe Centre and 4 per day in the residential facility. • The Haven Project is able to support 100 to 110 registered clients at any one time. Registration is subject to annual renewal.

  20. Fundamental Concepts • Haven Community Advisory Group • Acceptable behaviour & boundaries • Recovery and Transitional Recovery

  21. Client Focus Group Questions • QUESTION 1: DO YOU FEEL THE HAVEN HELPS YOU PERSONALLY? IF YES, HOW? IF NO, WHAT WOULD YOU LIKE THE HAVEN TO DO FOR YOU? • QUESTION 2: CAN YOU SAY SOMETHING ABOUT THE KINDS OF RESPONSES YOU HAVE RECEIVED FROM THE HAVEN WHEN YOU HAVE BEEN FEELING VULNERABLE OR IN CRISIS? • QUESTION 3: WHAT HAS BEEN YOUR EXPERIENCE OF SOME OF THE GROUPS, ACTIVITIES AND ONE TO ONES AND OTHER THERAPIES AT THE HAVEN THAT YOU HAVE PARTICIPATED IN? • QUESTION 4: COULD YOU SAY SOMETHING ABOUT THE HAVEN AS A COMMUNITY AND WHAT THIS MEANS TO YOU? • QUESTION 5: ARE YOU LEARNING ANY NEW SKILLS AT THE HAVEN? IF SO, WHAT DO YOU GAIN FROM THESE NEW SKILLS? • QUESTION 6: COULD YOU SAY SOMETHING ABOUT THE KINDS OF COPING STRATEGIES YOU HAVE USED BEFORE COMING TO THE HAVEN AND WHETHER THESE HAVE CHANGED? • QUESTION 7: SINCE COMING TO THE HAVEN DO YOU FEEL YOU SPEND LESS TIME DISLIKING YOURSELF? • QUESTION 8: IN WHAT WAYS, IF ANY, DO YOU FEEL YOU HAVE CHANGED AS A PERSON SINCE ATTENDING THE HAVEN? • QUESTION 9: HOW WOULD YOU DEFINE RECOVERY? • QUESTION 10: DO YOU THINK RECOVERY IS FRIGHTENING? • QUESTION 11: CAN YOU SAY SOMETHING ABOUT HOPES, DREAMS AND GOALS FOR THE FUTURE, AND WHETHER YOUR VISION OF THIS HAS CHANGED SINCE COMING TO THE HAVEN? • QUESTION 12: WHAT ELSE DO YOU FEEL THE HAVEN COULD DO TO SUPPORT YOU IN RECOVERY? • HAVE YOU GOT ANYTHING MORE TO ADD?

  22. Contact Details • Tel/Fax: 01206 28 73 16 • Email: heather.castillo@thehavenproject.org.uk

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