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"The Strategic Planning for Autism in Europe: Past, Present and Perspectives ".

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives ". " The Autism Spectrum Disorders research in Ireland". NUI Galway, Ireland, January 2012. "The Strategic Planning for Autism in Europe: Past, Present and Perspectives". What is eapha ?.

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"The Strategic Planning for Autism in Europe: Past, Present and Perspectives ".

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  1. "The Strategic Planning for Autism in Europe: Past, Present and Perspectives". " The Autism Spectrum Disorders research in Ireland". NUI Galway, Ireland, January 2012.

  2. "The Strategic Planning for Autism in Europe: Past, Present and Perspectives". What is eapha? eapha is the European Autism Public Health Alliance of stakeholders working to create a European public health plan for autism. • Vision • eaphaaims to transform the lives of persons with autism, their families and carers by providing a plan of action and an ongoingforum for parents’ organisations, academic institutions and public health agencies to share knowledge, experience and skills and to promote advocacy for the needs of people with autism. • Mission • eapha’smission is to design and promote a public health planning framework in order to achieve the long term vision of transforming the lives of persons with autism, their families and carers in Europe.

  3. "The Strategic Planning for Autism in Europe: Past, Present and Perspectives". Impact on Society ASDs as common conditions: Better identification and expanded definition or a true increase? Creates great concern about causes Research takes time and money – families are dealing with ASDs now! Increases in people needing services strains already taxed educational and service systems special education costs or residential care cost Lifetime support usually needed Need for family support systems Need for professional training and resources

  4. "The Strategic Planning for Autism in Europe: Past, Present and Perspectives". How much Autism is there? CDC reported 1:110 children at 8 years old European population 2010= 500000000 European estimated ASD rate= 5000000 Affected population 5%= 25,000,000 Population size Belgium & Netherland Social Mortality Rate Indicator?

  5. European Autism Action 2020: A Strategic Public Health Plan European Autism Information System EAIS-Project 60% Co-financed by DG SANCO European Commission Programme of Community Action in the Field of Public Health (2003-2008) Duration: 34 months Total Cost: € 796,757.00 Started January 2006 Ending October 2008

  6. European Autism Action 2020: A Strategic Public Health Plan First Public Health program (2003 – 2008) European Autism Information System (EAIS project) main results: • eapha (European Parliament October 2007 EAA ) • European Protocol for Autism Spectrum Disorder Prevalence (EPAP) • Protocol for estimating the economic impact of ASD • Harmonized Manual for early detection on ASD • European population based surveillance on ASD • Distance learning platform proposal

  7. European Autism Action 2020: A Strategic Public Health Plan European Nework of Surveillance on risk factors for Autism and Cerebral Palsy ENSACP 60% Co-financed by EAHC Programme of Community Action in the Field of Public Health (2008-2013) Duration: 27 months Total Cost: € 547,372.74 Started January 2008 Ending March 2010

  8. European Autism Action 2020: A Strategic Public Health Plan • Second Public Health program (2008 – 2013) • European Network for Surveillance of risk factor on Autism and Cerebral Palsy (ENSACP) Project main results: • Literature review on perinatal risk factors on ASD and CP • Literature review on biomarkers for ASD and CP • Manual for harmonization of perinatal risk factors on ASD and CP • Manual for harmonization of biomarkers on ASD and CP • Protocols for analytical studies on ASD and CP

  9. "The Strategic Planning for Autism in Europe: Past, Present and Perspectives". Consultation Process • 3rd Panel of Experts Meeting • Sub-regional meetings (Budapest, Palma de Mallorca) • Online process • European Autism Action 2020 (EAA2020) Dublin on 29th November.

  10. "The Strategic Planning for Autism in Europe: Past, Present and Perspectives".

  11. "The Strategic Planning for Autism in Europe: Past, Present and Perspectives". Estonia • No ADOS-G • Only since 2006, special support to ASD children in education and only in larger cities • No manuals on teaching children with Autism Slovenia • First Centre for Autism in 2005 (parents received no support at that time) Latvia • First diagnosis in 2006 (before then only MR, Schizophrenia) • No special program for ASD in special schools, not well categorized in schools yet (mental delay group). No integration. • Only for the last 3 years drugs have ceased to be the main treatment for ASD • No services for Adults • Diagnosis at 3-4 years

  12. "The Strategic Planning for Autism in Europe: Past, Present and Perspectives".

  13. "The Strategic Planning for Autism in Europe:Past, Present and Perspectives".

  14. "The Strategic Planning for Autism in Europe:Past, Present and Perspectives".

  15. "The Strategic Planning for Autism in Europe:Past, Present and Perspectives". "The Strategic Planning for Autism in Europe: Past, Present and Perspectives" • Public health interpretation • standard of care on ASD in Europe; • global economic crisis; • political commitment.

  16. Thank you! "The Strategic Planning for Autism in Europe: Past, Present and Perspectives". " The Autism Spectrum Disorders research in Ireland". NUI Galway, Ireland, January 2012.

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