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New Strategic Focus . New Focus New Programs New Resources. NKF Strategic Focus. Everything we do is directly related to meeting our strategic goals in these three categories. Awareness. Now! You Know Campaign NEW! Increase in Social Media, www.kidney.org. Awareness – Now! You Know.
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New Strategic Focus New Focus New Programs New Resources
NKF Strategic Focus Everything we do is directly related to meeting our strategic goals in these three categories
Awareness • Now! You Know Campaign NEW! • Increase in Social Media, www.kidney.org
Awareness – Now! You Know • New Blogs – www.kidney.org • PLUS • “The Pressure Point” • “Advocacy in Action” • “Kidney Walk Talk”
Awareness – Now! You Know • The Faces of Kidney Disease • Real People, Real Stories – kidney.org
Awareness – Now! You Know • Your Kidneys and You – NEW Program • Slideshow (PowerPoint) with scripted notes • Implementation guide • Participant evaluation forms • Bookmark handout w/risk factors • 20-30 minute awareness presentation to established groups • “Train the Trainer” program for volunteer presenters in some areas. More to follow next year. • Impact tracked and measured nationally
Prevention • CKD Primary Care Initiative • Patient Education • KEEP Healthy • http://www.kidney.org/news/keephealthy/index.cfm
Prevention • Patient Education • Kidney Living magazine for dialysis patients – over 30,000 home subscribers http://www.kidney.org/patients/kidneyliving/ • • “Living Well with Kidney Failure”Brand New! DVD series to educate patients about kidney failure, dialysis, transplant and coping. Go To http://www.kidney.org/professionals/KLS/lwkf.cfm for more info and to view video • • Extensive library of resources and publications available at www.kidney.org
Prevention • KEEP Healthy • Transitioned from KEEP to KEEP Healthy to align with NKF’s new Strategic Plan and allow us to reach more people. • CKD assessment • Open to the public • One-on-One Clinician conversation • Optional nutrition component • Spreading across the country • Volunteer opportunity – • Schedule on www.kidney.org • Coming soon! 3 month schedule lead time from NKF to Adrienne to you.
Treatment • Professional Education • NKF Cares / PEERS • Research and Advocacy
Treatment • Professional Education • Professional Guidelines • In 2002 the NKF were the first to quantitatively define Chronic Kidney Disease and publish the treatment guidelines used by Nephrologists across the country (KDOQI) . http://www.kidney.org/professionals/kdoqi/index.cfm • In 2006 KDIGO (Global) endorsed the KDOQI guidelines. • In 2013 KDIGO have updated our guidelines to establish Global standards of care. http://kdigo.org/home/guidelines/ • CME/CE- For all disciplines http://www.kidney.org/professionals/kls/cmeprograms.cfm • Professional Apps – Search “NKF” on your App store • CM 14 – Spring Clinical Meeting in Las Vegas April 22nd – 26thhttp://www.kidney.org/news/meetings/clinical/index.cfm
Treatment • NKF Cares / PEERS • NKF Cares – Served 10,000 in FY 13 Toll free support for patients facing treatment or on treatments and their family members 1-855-653-2273 • PEERS A telephone based Peer-to-Peer support program for patients on dialysis http://www.kidney.org/patients/peers/index.cfm
Treatment • Research • Six one-year Young Investigator grants were awarded, effective July 1, 2013. • Three basic science grants, three clinical research grants. • http://www.kidney.org/professionals/research/research_info.cfm
Treatment • Advocacy • Immunosuppressive Drugs: Legislation to expand coverage of immunosuppressive drugs for kidney transplant recipients. NKF government relations staff and patient advocates have met with 100 congressional offices so far this year to help secure support . • Take Action Network: Over 1100 people took action on NKF’s request to contact Congress about supporting the Immunosuppressive Legislation. http://donate.kidney.org/site/PageServer?pagename=ActionCenter • Home Dialysis Alliance : As a member of the Steering Committee, NKF is actively working to address barriers and expand access to this underused therapy, which can improve patients’ quality of life and increase survival.
Coming Soon • CKD Manual Updates • Clear steps to volunteering with the NKF • Formal Volunteer Positions & Day-of volunteer opportunities to pursue • Enough notice of activities to plan for participation • Direct contacts across the country to call to volunteer