PHASE 1: VISION AND STRATEGY

1. PHASE 1: VISION AND STRATEGY CF Adult Publishing Platform MARCH 11, 2015

2. THE MANDATE “ We will strengthen our relationship with the growing CF adult population and give them a voice.” —STRATEGY 6: ENGAGE AND LISTEN TO CF ADULTS, FROM A STRATEGIC PLAN FOR MORE TOMORROWS 2014-2018 March 11, 2015 | 2

3. OUR APPROACH To fulfill this strategic mandate, we are proposing a discrete platform enabling CF adults to create and share authentic, rich, and immersive storyscapes. March 11, 2015 | 3

4. OUR APPROACH It is not a foundation mouthpiece or blog It is independent and guided by the CF Adult Task Force Content, filtered under strict guidelines, addresses issues specific to CF Adults • • • March 11, 2015 | 4

5. WHAT CF ADULTS SAID ABOUT CONTENT “High stress topics that are emotionally burdensome.” “Real life with CF; inspirational but not sugary.” “Infection control, pregnancy, fertility, end of life, disability—can’t be so cleaned up and non-controversial that it feels like the Foundation’s mouthpiece.” “When do I tell my boss I have cystic fibrosis?” “Focused on a positive and inspiring community.” “Hard core information sharing—education and storytelling.” March 11, 2015 | 5

6. VISUAL EXPLORATION What it might look like

8. OPERATING SYSTEM MODEL

9. OPERATING SYSTEM MODEL • Pilot contributors will be selected and screened by the Foundation and the CF Adult Task Force Commenting—filtered by the technology, the community stewards and manager— closes the loop and allows for a sense of community • March 11, 2015 | 9

10. “I NOW KNOWSOMEONE WITH CF”

11. Questions?