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SEER PATTERNS OF CARE

SEER PATTERNS OF CARE. Kimberly Kimbler, MS, CCRP, CTR Kentucky Cancer Registry kimberly@kcr.uky.edu. WHAT IS PATTERNS OF CARE (POC)?.

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SEER PATTERNS OF CARE

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  1. SEER PATTERNS OF CARE Kimberly Kimbler, MS, CCRP, CTR Kentucky Cancer Registry kimberly@kcr.uky.edu

  2. WHAT IS PATTERNS OF CARE (POC)? • A population-based snapshot designed to “assess the incorporation of state-of-the-art cancer treatments into clinical practice and the extent to which cancer patients receive such treatments” Public Law 100-607, Sec. 413 (a)(2)(C)

  3. Mandated in 1988

  4. 14 SEER REGISTRIES PARTICIPATED IN 2014

  5. USES OF POC DATA • Describe adjuvant therapy use in a community setting • Practice patterns in communities • Surgery, radiation therapy, chemotherapy, hormonal therapy in specific cancers • Compare treatment modalities over time and by age, race, and ethnicity

  6. USES OF POC DATA • Effects of comorbid conditions • Describe treatment by hospital characteristics • Describe the usage of biomarkers and diagnostic tests and compare their use by race/ethnicity and geographic region • Provide additional data for analyses by linking POC data to SEER Medicare files

  7. Address quality control issues related to routine data abstraction

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  9. Site-specific cases randomly selected from CPDMS • Cases are • re-abstracted per POC Manual • Cases submitted to KCR

  10. Information is entered into a POC specific local database • Data is de-identified and uploaded to a secure SEER website • ALL treatment verified by reviewing records or by physician contact

  11. SO…WHAT DOES POC COLLECT? • Much of the same information as the abstracted case….. just sometimes in a slightly different way or in greater detail

  12. POC VISIT • Hospital records • Medical Oncology • Radiation Oncology • Legacy EMR systems/paper charts (if applicable)

  13. Cancer is increasingly diagnosed and treated in the outpatient setting

  14. PHYSICIAN VERIFICATION …and the path to all treatment

  15. POC: WHAT’S NEXT…. 69,212 An estimated projection calculated by the Surveillance, Epidemiology and End Results (SEER) Program using SEER 18, 2007-2011. http://www.cancer.gov/researchandfunding/snapshots/adolescent-young-adult#footnote1 (accessed 9/2014) Adolescents and young adults (AYA) diagnosed with cancer in 2011

  16. AYA CANCERS (AGES 15-39)

  17. ACKNOWLEDGEMENTS • Tom Tucker • Frances Ross • Celia Love • Mary Jane Byrne • The awesome folks at KCR

  18. QUESTIONS?

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