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Disability and Research

Disability and Research. Researching Society and Culture 28 th January 2014 Hannah Jones. Ways of thinking about disability Medical model Social model Relational model The politics of research practice: from research subjects to research participants

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Disability and Research

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  1. Disability and Research Researching Society and Culture 28th January 2014 Hannah Jones

  2. Ways of thinking about disability • Medical model • Social model • Relational model • The politics of research practice: from research subjects to research participants • How different methods of understanding disability lead to different research designs

  3. Perspectives on Disability • Medical model • Bureaucratic category • Social model

  4. The Social Model of Disability • Impairment • Disabled by society • Barriers • Disablement

  5. Social model of disabilityhttp://www.youtube.com/watch?v=9s3NZaLhcc4

  6. Post-structuralist critique of the Social Model of Disability 1) Totalising: suggests all experiences of ‘disability’ work the same, for everyone in all times, places and contexts 2) Distinction between impairment (biological) and disability (social) not so clear-cut

  7. Post-structuralist critique of the Social Model of Disability Suggests instead a relational model of disability, where context, situation and mismatched relationship between person and environment are what constitute disability … but what does this mean for politics of disability equality?

  8. From http://www.channel4.com/news/disabled-people-protest-against-cuts

  9. Alison Lapper Pregnant sculpture by Marc Quinn

  10. Politics and Research IntersectionalityActivist research Empowerment Policy research Personal and political Theory-based Social change

  11. Participatory Action Research (a) a collective commitment to investigate an issue or problem (b) a desire to engage in self- and collective reflection to gain clarity about the issue under investigation (c) a joint decision to engage in individual and/or collective action that leads to a useful solution that benefits the people involved, and (d) the building of alliances between researchers and participants in the planning, implementation, and dissemination of the research process. MacIntyre, A (2008) Participatory Action Research, London: Sage. P1.

  12. Emancipatory Research Practicehttp://www.youtube.com/watch?v=CN9x6OeQrQo

  13. An approach – not a method Participatory action research could use many methods of data collection and data analysis The point is that the whole process – research design, data collection, analysis and dissemination – involves the research ‘subjects’ as active participants and decision makers

  14. Questions for action researchers Politics • Involvement • Power • Motivations ‘Status of knowledge’ • Objectivity • Validity • Reliability What kind of research questions are not appropriate for action research?

  15. TO SUMMARISE • Disability studies show us how different ways of looking at the world produce different research problems – with both methodological and political consequences • Participatory research is one popular approach in disability studies, which means using social research methods differently • There are both possibilities and limitations to participatory action research

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