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Quality and Ethics in Health-Related Information. Fernando Lolas Stepke Bioethics PAHO/WHO. Levels of Cognitive Construction. Facts – Information Data and news (meaningful information) Knowledge (organized information) Formal knowledge Lay knowledge and beliefs Wisdom (personal virtue).
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Quality and Ethics in Health-Related Information Fernando Lolas Stepke Bioethics PAHO/WHO
Levels of Cognitive Construction • Facts – Information • Data and news (meaningful information) • Knowledge (organized information) • Formal knowledge • Lay knowledge and beliefs • Wisdom (personal virtue)
Health-Related Literature • Scientific : Primary • Secondary • Tertiary • Non-scientific: Quaternary • News/Popular
Specialized audience Expert rhetoric Impersonal Truthfulness General audience Resources Person-related Novelty Data versus News
Health Information asPublic Good • Publicness in consumption • Publicness in net benefits • Publicness in decision making
Gemeinschaft Social relations are ends in themselves Face-to-face encounters Retributive justice Gesellschaft Social relations are means to achieve goals Impersonal (moral imagination) Distributive justice FORMS of COMMUNITY
ETHICAL ANALYSIS • Formulation • Justification of • Application • VALUES • PRINCIPLES • NORMS of
BIOETHICAL PRINCIPLES Respect for persons Beneficence Non Maleficence Justice OTHERS
Application of principles • Goal - based • Duty - based • Rights - based
QUALITY OF INFORMATION • Facts versus News distinction is relevant • Social interest is a key concept • Conflicts of interests should be considered • Trust is a diachronic good
KNOWLEDGE AND POWER • Knowledge is power • Power creates knowledge ? • Freedom “of” vs freedom “for” • Opinion engineering • Ethical sustainability may require prudence