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This presentation discusses concepts of Health-Related Quality of Life (HRQOL), uses CDC HRQOL surveillance program's measures, and explores state trends in unhealthy days. A needs assessment is conducted to identify disparities in HRQOL. Outcome measures cover physical, emotional, and social dimensions of health. Various measures, like Short-Form 36 and Quality of Life in Epilepsy Scale-10, are used to assess HRQOL. The assignment involves developing a questionnaire using core Healthy Days measures and demographic variables, calculating mean unhealthy days, and comparing local findings with state estimates. The paper should describe methods, findings, interpretations, proposed interventions, and comparisons with state estimates.
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Social and Behavioral Sciences Assignment 2 Needs Assessment to Identify Disparities in Health-Related Quality of Life (HRQOL)
Presentation Overview • Health-Related Quality of Life (HRQOL): concepts and measurement • CDC HRQOL Surveillance Program’s Healthy Days Measures • State trends in unhealthy days • Assignment overview: Needs assessment and disparities in HRQOL
Broad outcome measures designed to measure physical, emotional, and social dimensions of health(McDowell & Newell, 1996). • No one definition of HRQOL is agreed upon, but generally assessed with generic measures (e.g., Short-Form 36) or disease-specific measures (e.g., Quality of Life in Epilepsy Scale-10(Ware & Sherbourne, 1992; Cramer et al., 1996). • Quality of Life Instruments Database (QOLID): Online database of generic and disease-specific measures. http://www.proqolid.org Measuring Health-Related Quality of Life (HRQOL)
What is Health-RelatedQuality of Life (HRQOL)? • For public health surveillance purposes, HRQOL was defined as…“an individual’s or group’s perceived physical and mental health over time.”(Measuring Healthy Days, CDC 2000) • http://www.cdc.gov/hrqol • http://www.cdc.gov/brfss
Core Healthy Days Measures 1. Would you say that in general your health is excellent, very good, good, fair, or poor? 2. Now thinking about your physical health, which includes physical illness and injury, for how many days during thepast 30 days was your physical healthnot good? 3. Now thinking about your mental health, which includes stress, depression, and problems with emotions, for how manydays during the past 30 days was your mental healthnot good? 4. During the past 30 days, for about how many days did poor physical or mental healthkeep you from doingyour usual activities, such as self-care, work, or recreation?
Unhealthy Days = days in the past 30 days when both physical and mental health were not good = Mentally unhealthy day = Physically unhealthy day = Healthy day
Trends in Unhealthy Days in the U.S., BRFSS 1996-2008 1996-1998 1999-2001 2002-2008 Mean number of unhealthy days 0 - 4.9 5.0 - 6.0 > 6.0 Source: CDC HRQOL Program, 2009
Assignment Instructions: • Select a group (≤ 20 peoplewithin the class or school, among friends or family members) with which to perform a needs assessment. • Using the CDC HRQOL Surveillance Program’s Healthy Days measures (four core questions available at http://www.cdc.gov/hrqol/methods.htm) and various demographic variables (e.g., gender, age, race), develop a questionnaire for either verbal or written administration. • After completing data collection, calculate the mean number of physically, mentally, and overall unhealthy days for the sample by subgroups. • Using the HRQOL Program’s Prevalence Data Page (available at http://apps.nccd.cdc.gov/HRQOL/), compare the local findings to state estimates (e.g., mean number of unhealthy days in females in your sample vs. the state estimates for female unhealthy days).
Instructions continued: • Based on your observations, explain observed differences, if any, between the group findings and state estimates. • According to your data, propose a theoretically-based intervention (choose a health behavior theory with which you are familiar), for the surveyed group to improve HRQOL. • Write a paper (4-5 pages) that (a) describes the methods, findings, and interpretation of your findings on HRQOL in the sample you studied; and (b) explains the similarities or differences between the findings for your sample and comparable state estimates in the most recent data year available (see item #4).