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Integrating Different Sources of Knowledge Into A Research Study:.

Panel Members. Susan Foley, PhD, Institute for Community InclusionRich Robison, D. Min, Federation for Children with Special NeedsAbdirahman Yusuf, Executive Director, Somali Development CenterElizabeth Bostic, Community Liaison, Institute for Community Inclusion. . 2. Overview. IntroductionsWha

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Integrating Different Sources of Knowledge Into A Research Study:.

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    1. Integrating Different Sources of Knowledge Into A Research Study:. The challenge and promise of community based participatory research 1

    2. Panel Members Susan Foley, PhD, Institute for Community Inclusion Rich Robison, D. Min, Federation for Children with Special Needs Abdirahman Yusuf, Executive Director, Somali Development Center Elizabeth Bostic, Community Liaison, Institute for Community Inclusion 2 Susan introduces everyoneSusan introduces everyone

    3. Overview Introductions What is CBPR Why researchers need to understand lived experience Why families and communities benefit from research participation and engagement How to structure research projects 3 Susan gives an overview of the presentationSusan gives an overview of the presentation

    4. What is CBPR? Many definitions Key components: Emphasis on long-term partnerships Equity in decision-making power Reciprocity in transfer of expertise Recognize strengths of all High value on lived experience Relevance to community Social change orientation Mutual ownership of process and products 4 Susan defines CBPRSusan defines CBPR

    5. Agency for Healthcare Research and Quality Definition CBPR “is a collaborative research approach that is designed to ensure and establish structures for participation by communities affected by the issue being studied, representatives of organizations, and researchers in all aspects of the research process to improve health and well-being through taking action, including social change.” (Community-Based Participatory Research: Assessing the Evidence (2004) www.ahrq.gov) 5 Susan provides the definition of CBPRSusan provides the definition of CBPR

    6. “Nothing about us, without us.” Disability Movement Expression 6 Susan: compare CBPR to this statementSusan: compare CBPR to this statement

    7. Why Research Needs to Be Responsive to Families? Rich Robison Elizabeth Bostic Abdi Yusuf Susan Foley 7 We all respond in kind to this questionWe all respond in kind to this question

    8. Different Sources of Knowledge Advocacy and Services Perspective Rich Robison: The Federation perspective Abdi Yusuf: The Somali Development Center perspective Lived Experience Elizabeth Bostic: The perspectives of parents of children with disabilities Observed Experience Susan Foley: The researcher perspective 8 We all respond in kind to this questionWe all respond in kind to this question

    9. Some project examples 9

    10. The Apple Project Experience Parent training initiative including an evaluation component with a randomized controlled study Research activities subcontracted to ICI Responsiveness to Families: Challenges and Successes Sources of knowledge Qualitative interviews combined with surveys Parent run organization leading Team members included target group Researchers observed training

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