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Survey results from 5 international nephrology congresses in 2007 regarding initial and long-term dialysis treatments, highlighting underutilization of home dialysis, emphasizing on cost-effectiveness and quality of life improvement.
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peritoneale dialyse, thuisdialyse, nacht- of low care dialyse? Kiezen voor low cost dialyse: Dr. Heidi Hoeben Dr. Ilse Muyshondt
Wat is de beste behandeling? Survey distributed at 5 international dialysis and nephrology congresses in 2007 Responses from 6595 delegates, 57% physicians, 28% nurses, 15% administrators or other
Wat is de beste behandeling? Question: “ What do youconsider the best initialdialysis treatment for a patientwithplanned start, todayand in the nearfuture?” CAPD/APD In-centre HD/HDF Home/self-care HD/HDF
Wat is de beste behandeling? Question: “ What do you consider the best initial dialysis treatment for a patient with planned start, today and in the near future?” CAPD/APD
Wat is de beste behandeling? Question: “ What do youconsidertobe the best long-term dialysis treatment for the majority of patients, todayand in the nearfuture?” CAPD/APD In-centre HD/HDF 3x/week In-centre HD/HDF > 3x/week Home/self-care HD/HDF > 3x/week
Wat is de beste behandeling? Question: “ What do youconsidertobe the best long-term dialysis treatment for the majority of patients, todayand in the nearfuture?” Home/self-care HD/HDF
Wat is de beste behandeling? Opinion vsreality (long term treatment)
WHY??? Underutilisation! Kosteneffectiviteit Levenskwaliteit vitaliteit verbeterde eetlust minder slaapproblemen verbeterde sexualiteit grotere onafhankelijkheid flexibiliteit meer betrokkenheid bij en controle over behandeling meer tewerkstelling
Gegevens NBVN: prevalentie, verdeling volgens leeftijdscategorie 30 jaar PD in ZNA
Gegevens NBVN: instroom dialyse 30 jaar PD in ZNA
Gegevens NBVN: co-morbiditeit 30 jaar PD in ZNA
Oorzaak enkel leeftijd en co-morbiditeit? Complex en multifactorieel: education of health care provider physician bias reimbursementpolicies availability patientpreference/disinterest
Oorzaak enkel leeftijd en co-morbiditeit? 1997 USRDS MorbidityandMortalityStudy, Wave 2: only 25% of patientsreceiving in-center hemodialysiswerepresentedself-care therapiessuch as PD or HomeHD as initialtherapy options
Oorzaak enkel leeftijd en co-morbiditeit? Attitudes of Canadian nephrologists toward dialysis modality selection, Jung et al. PDI 1999: only 18% of new patients with ESRD had medical contraindications against starting PD at home
Oorzaak enkel leeftijd en co-morbiditeit? Wellbound, 2007: 576 patients – earlyeducation on allavailable treatment options - 42% selectedself-care (home) therapy. 206 patientscompleted training: 164 (80%) chose PD and 42 (20%) HomeHD Grote nood aan pre-dialyse educatie!
Keuze dialysebehandeling The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies, Morton et al. BMJ 2010 – review of qualitative studies of decision making and choice for dialysis, transplantation, or palliative care
Integrated Care Definitie(Wikipedia): ‘also known as coordinated care, comprehensive care, seamless care and transmural care – is a worldwide trend in health care reforms and new organizational arrangements focusing on more coordinated and integrated forms of care provision. Integrated care may be seen as a response to the fragmented delivery of health and social services being an acknowledged problem in many health systems’
Integrated Care Patiënt centraal Tijdige verwijzing naar nefroloog: vroegtijdig aanpakken van cardiovasculaire risicofactoren en co-morbiditeit, met het oog op vertragen van evolutie naar eindstadium nierfalen Als nierfunctievervangendetherapie nodig: pre-emptievetransplantatie met levende donor? Patiënt uitgebreid informeren over voor- en nadelen van de verschillende dialyseopties. Keuze laten tussen home-based en in-center behandeling. Patiënt nauw betrekkenin beslissingsproces over ganse loop van de behandeling
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