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Autism in Utah: Our Pieces of the Puzzle

Autism in Utah: Our Pieces of the Puzzle. Rebecca Giles, MPH, CHES Utah Department of Health Autism Project Coordinator December 8, 2008. Overview. Autism Spectrum Disorder (ASD) Activities in Utah Combating Autism Act Initiative Funding

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Autism in Utah: Our Pieces of the Puzzle

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  1. Autism in Utah: Our Pieces of the Puzzle Rebecca Giles, MPH, CHES Utah Department of Health Autism Project Coordinator December 8, 2008

  2. Overview • Autism Spectrum Disorder (ASD) Activities in Utah • Combating Autism Act Initiative Funding • Leadership Education in Neurodevelopmental Disabilities • Regional Planning Summit • ASD Systems Development Project

  3. Utah

  4. Coordination and advocacy activities Utah Family Voices Autism Council of Utah Utah Autism Initiative Utah Framework – state plan Utah Registry of Autism and Developmental Disabilities Services Health: Baby Watch Early Intervention (Part C) Schools (Part B) Utah State University: Center for Persons with Disabilities Human Services: Division of Services for People with Disabilities Special schools and programs Private Providers Autism Activities in Utah Lots of gaps!!

  5. Autism Activities in Utah • State Framework • Infrastructure • Early Identification and Diagnosis • Services • Adult Transition • Research

  6. Combating Autism Act Initiative • Utah Regional Leadership Education in Neurodevelopmental Disabilities (URLEND) – Autism Enhancement • Funding • In–state collaborations • Regional partnership • Adds 10 additional trainees per year • Family involvement

  7. Combating Autism Act Initiative • “Act Early” Regional Summit • Spring 2009 • Forum for enhancing state-wide ASD service provision and coordination for families • State teams: UT, WY, CO, MT, ND, SD

  8. Combating Autism Act Initiative • Utah ASD Systems Development Project • Medical Home Training • Information Resources • Early Diagnosis • Family Support

  9. Utah ASD Systems Development Project • Medical Home Training • Learning Collaboratives for Medical Teams • Central learning session approach • In-office approach • Distance learning approach • Learning Collaborative for Dental Teams

  10. Utah ASD Systems Development Project • Information Resources • www.medhomeportal.org • Expand information • Market

  11. Utah ASD Systems Development Project • Early Diagnosis • Child find project • Preschool special education teachers

  12. Utah ASD Systems Development Project • Family Support • “Autism ABCs: Education Program for Caregivers of Children with Newly Diagnosed ASD” • Family Navigators • Family Conference

  13. Utah ASD Systems Development Project The (medical) professionals of the future will work with members of the public, empowering them to make choices through high-quality information, open discussion and genuine partnership.” Julia Neuberger—King’s Fund (UK)

  14. Autism in Utah: slowly the pieces come together Rebecca Giles rgiles@utah.gov

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