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Eating Disorders Coalition for research, policy & Action

Eating Disorders Coalition for research, policy & Action. Paula Drelick SB 780. Eating Disorder Statistics. MISSION: To advance the federal recognition of eating disorders as a public health priority. KEY PRIORITIES:

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Eating Disorders Coalition for research, policy & Action

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  1. Eating Disorders Coalition for research, policy & Action Paula Drelick SB 780

  2. Eating Disorder Statistics

  3. MISSION: To advance the federal recognition of eating disorders as a public health priority.

  4. KEY PRIORITIES: To further research, education and awareness of eating disorders in the United States. 2. To gain federal support for improved access to healthcare/insurance needs. 3. To encourage other Americans to advocate on behalf of victims of eating disorders and their families. The EDC is comprised of almost 35 member organizations, including hospitals, eating disorder treatment facilities, doctors, psychiatrists, nutritionists and support groups/foundations.

  5. Insurance Issues • Families must make decisions related to recovery/continuing treatment based solely on finances and not medical advice. • Eating disorder treatment requires at least 6 weeks of in-patient treatment. • Insurance companies cover on average 10-15 days. Good Morning America News Report

  6. Mental Health Parity • Paul Wellstone and Pete Domenici Mental Health Parity and Addiction Equity Act • Does not explicitly mention eating disorders • Representative Patrick Kennedy Kennedy at Mental Health Parity Hearing

  7. The FREED Act • Federal Response to Eliminate Eating Disorders Act • Fill in the gaps of the Mental Health Parity bill • Would require insurance companies to cover eating disorder treatment. • Would establish “Centers of Excellence” to conduct research, education and training to health and school/higher education professionals. • Provide funding for PSA’s and integration into anti-obesity campaigns.

  8. February 25, 2009 – Rep. Patrick Kennedy and the EDC presented the FREED Act on Capitol Hill • Bill is currently “with committee” • EDC is encouraging advocates to contact their state representatives to co-sponsor the bill which will cause the bill to move out of committee faster, get a hearing and eventually get a floor vote. • David Jaffe, Executive Director of EDC

  9. Eating Disorders Awareness, Prevention and Education Act • Seeks to raise awareness and prevention of eating disorders in the classroom • Currently with committee and only in the first phase of the legislative process IMPACT Act • Improved Nutrition and Activity Act of 2002 • Sought to address obesity and eating disorders simultaneously, recognizing the interdependence of the two problems • Bill never made it past committee

  10. Opposition to BMI Reporting in Schools • EDC believes only appropriate environment is a doctor’s office, not the classroom • Child might turn to dangerous dieting techniques to lose weight and get acceptance from peers • Main problem: BMI reporting focuses on weight rather than health as the “measuring stick” for children • Children are being taught that thin = healthy, regardless of eating or exercise habits

  11. The Role of the Public • Virtual Lobby Days • Letter writing campaigns to senators and state representatives • “Scripts” • Family/Friends Action Council (FAC) • Blog – eatingdisorderscoalition.blogspot.com • Facebook

  12. Eating Disorder Awareness in Massachusetts • At the top of the list of states with the most coverage for treatment

  13. Massachusetts General Hospital’s Harris Center • Founding Member of the EDC • MEDA – Multi-service Eating Disorders Association in Newton, MA • To Mentor the community in its understanding of eating disorders. • To Empower individuals to live free of body, food and weight obsessions. • To Develop eclectic and diversified treatment teams for clients and their loved ones. • To Assist individuals and their loved ones by offering the training and support necessary for recovery.

  14. References For Statistics: • Collins, M.E. (1991). Body figure perceptions and preferences among pre-adolescent children. International Journal of Eating Disorders, 199-208. • Crowther, J.H., Wolf, E.M., & Sherwood, N. (1992). Epidemiology of bulimia nervosa. In M. Crowther, D.L. Tennenbaum. S.E. Hobfoll, & M.A.P. Stephens (Eds.). The Etiology of Bulimia Nervosa: The Individual and Familial Context (pp. 1-26) Washington, D.C.: Taylor & Francis. • Fairburn, C.G., Hay, P.J., & Welch, S.L. (1993). Binge eating and bulimia nervosa: Distribution and determinants. In C.G. Fairburn & G.T. Wilson, (Eds.), Binge Eating: Nature, Assessment, and Treatment (pp. 123-143). New York: Guilford. • Gordon, R.A. (1990). Anorexia and Bulimia: Anatomy of a Social Epidemic. New York: Blackwell. • Grodstein, F., Levine, R., Spencer, T., Colditz, G.A., Stampfer, M. J. (1996). Three-year follow-up of participants in a commercial weight loss program: can you keep it off? Archives of Internal Medicine. 156 (12), 1302. • Gustafson-Larson, A.M., & Terry, R.D. (1992). Weight-related behaviors and concerns of fourth-grade children. Journal of American Dietetic Association, 818-822. • Hoek, H.W. (1995). The distribution of eating disorders. In K.D. Brownell & C.G. Fairburn (Eds.) Eating Disorders and Obesity: A Comprehensive Handbook (pp. 207-211). New York: Guilford. • Hoek, H.W., & van Hoeken, D. (2003). Review of the prevalence and incidence of eating disorders. International Journal of Eating Disorders, 383-396. • Mellin, L., McNutt, S., Hu, Y., Schreiber, G.B., Crawford, P., & Obarzanek, E. (1991). A longitudinal study of the dietary practices of black and white girls 9 and 10 years old at enrollment: The NHLBI growth and health study. Journal of Adolescent Health, 27-37. • http://www.nationaleatingdisorders.org/p.asp?WebPage_ID=286&Profile_ID=41138 • National Institutes of Health. (2005). Retrieved November 7, 2005, from http://www.nih.gov/news/fundingresearchareas.htm • Neumark-Sztainer, D. (2005). I’m, Like, SO Fat! New York: The Guilford Press. pp. 5. • Shisslak, C.M., Crago, M., & Estes, L.S. (1995). The spectrum of eating disturbances. International Journal of Eating Disorders, 18 (3), 209-219. • Smolak, L. (1996). National Eating Disorders Association/Next Door Neighbors Puppet Guide Book. • Sullivan, P. (1995). American Journal of Psychiatry, 152 (7), 1073-1074.

  15. For Content: • Cogan, J., Franko, D., & Herzog, D. (2005). Federal advocacy for anorexia nervosa: An american model. International Journal of Eating Disorders, 37, S101. • Cogan, J., Smith, J., & Maine, M. (2008). The risks of a quick fix: A case against mandatory body mass index reporting lawsRoutledge Taylor & Francis Group. • Croll, J. (2009). Speech at congressional briefing for the FREED act. Retrieved 11/112/09, from http://www.eatingdisorderscoalition.org/documents/crollbriefingtalk.pdf • Eating Disorders Coalition for Research, Policy & Action. (2009 a). Summary of the FREED act. Retrieved 11/10/09, from http://www.eatingdisorderscoalition.org/documents/summaryofFREEDAct.pdf • Eating Disorders Coalition for Research, Policy & Action. (2009 b). Victory in passing mental health parity. Retrieved 10/24/09, from http://www.eatingdisorderscoalition.org/legislative-update.htm • Eating Disorders Coalition for Research, Policy & Action. (2009 c). Why the IMPACT ACT is a smart policy: Addressing obesity and eating disorders in tandem. Retrieved 11/10/09, from http://74.125.113.132/search?q=cache:8iwR18ZZafoJ:bono.house.gov/UploadedFiles/EDC%2520IMPACT%2520Act%2520%2520stats%2520for%2520BONO.doc+EDC,+Why+the+IMPACT+ACT+is+smart+policy:&cd=1&hl=en&ct=clnk&gl=us • Eating Disorders Coalition for Research, Policy & Action. (2009 d). EDC mission. Retrieved 10/24/09, from http://www.eatingdisorderscoalition.org/mission.htm • Eating Disorders Coalition for Research, Policy & Action. (2009 e). Join the Family/Friends action council. Retrieved 10/24/09, from http://www.memberize.com/clubportal/ClubStatic.cfm?clubID=1997&pubmenuoptID=20755 • Eating Disorders Coalition for Research, Policy & Action. (2009 f). Summary of legislation. Retrieved 11/12/09, from http://www.eatingdisorderscoalition.org/summary-legislation.htm • Eating Disorders Coalition for Research, Policy & Action. (2009 g). Virtual lobby day, august 10-28. Retrieved 10/24/09, from http://www.eatingdisorderscoalition.org/VirtualLobbyDay.htm • Eating Disorders Coalition for Research, Policy & Action. (2009 h). We urge you to oppose mandatory BMI reporting in the schools. Retrieved 11/11/09, from http://www.eatingdisorderscoalition.org/documents/TalkingpointsBMI.pdf • FREED act now in house of representatives. (2009). Retrieved 11/21/09, from http://eatingdisorders.about.com/b/2009/03/06/freed-act-now-in-house-of-representatives.html

  16. GovTrack.us. (2009). H.R. 26: Eating disorders awareness, prevention, and education act of 2009. Retrieved 11/21/09, from http://www.govtrack.us/congress/bill.xpd?bill=h111-26 • Gregorio, L. (2009). Mental health parity. Retrieved 11/10/09, from http://www.nationaleatingdisorders.org/uploads/file/EDparityanddescription(2).pdf • MacDonald, K. (2008). Miss america 2008 kirstenhaglund joins citizens to lobby congress on eating disorders. Retrieved 11/10/09, from http://www.freedfoundation.org/activism.php • Massachusetts General Hospital. (2009 a). Harris center. Retrieved 11/10/09, from http://blackdiamondmarketinggroup.com/harris/about_what.asp • Massachusetts General Hospital. (2009 b). Healthcare advocacy. Retrieved 11/10/09, from http://blackdiamondmarketinggroup.com/harris/about_hc_adv.asp • MEDA. (2009). MEDA mission. Retrieved 11/11/09, from http://www.medainc.org/about/ • NAMI Massachusetts. (2008). The new massachusetts mental health parity law: Chapter 256 of the acts of 2008. Retrieved 11/18/09, from http://www.namimass.org/policy/policy.htm • National Eating Disorders Association. (2006). Insurance issues. Retrieved 11/10/09, from http://www.nationaleatingdisorders.org/nedaDir/files/documents/handouts/InsuranceIssues.pdf • National Eating Disorders Association. (2009). Statistics: Eating disorders and their precursors. Retrieved 11/10/09, from http://www.nationaleatingdisorders.org/p.asp?WebPage_ID=286&Profile_ID=41138 • Representative patrick j. kennedy, mental health parity. (2009). Retrieved 11/21/09, from http://www.patrickkennedy.house.gov/IssueDetails.aspx?IssueID=20 • The Alliance for Eating Disorders Awareness. (2005). Why people with eating disorders need mental health parity now: A matter of life or death. Retrieved 11/10/09, from http://www.eatingdisorderinfo.org/Advocacy/EatingDisordersAdvocacy/tabid/978/Default.aspx • The Library of Congress. (2009). THOMAS: Federal response to eliminate eating disorders. Retrieved 11/21/09, from • http://www.thomas.gov/cgibin/bdquery/D?d111:3:./temp/~bdG5WT::|/bss/d111query.html • The Renfrew Center Foundation. (2009). Eating disorders 101 guide: A summary of issues, statistics and resources. Retrieved 10/24/09, from www.renfrewcenter.com/uploads/resources/1067338472_1.doc

  17. For Photographs: • http://www.abeingo.org/images_news/anorexia.jpg • http://media.photobucket.com/image/Anorexia/mantusmania/bulimia-anorexia.jpg • http://bigrab.files.wordpress.com/2008/04/la_bulimia_1.jpg • http://booty-bootcamp.com/blog/uploaded/Stock%20photos/binge-eating.jpg • http://dorischua.com/wp-content/uploads/2007/11/eating.jpg • http://www.jillstanek.com/Patrick%20Kennedy%20abortion%20healthcare%20Catholic.jpg

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